Basic Science Trainee Committee Launches Pre-Clinical Science Standard Operating Procedures (SOP) Library
We’re pleased to announce the launch of the BSTC Standard Operating Procedures (SOPs)!!!
The Basic Science Trainee Committee (BSTC) has developed a comprehensive set of Standard Operating Procedures (SOPs) tailored to the neuromuscular field, reflecting current best practices and expert consensus from specialists across Canada. These SOPs provide clear, standardized guidance for laboratories, clinics, and research programs involved in neuromuscular diagnostics and testing. By making them accessible on our website, the BSTC aims to promote consistency, reliability, and quality in neuromuscular care and research nationwide. This shared resource will help align practices across institutions, support trainees in developing technical and analytical skills, and strengthen the overall quality and reproducibility of lab work across Canada. Our SOP Library is now fully accessible through our Resource Hub.
Access Our SOP Library
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New Publication from the NMD4C Clinical Trial Network Strengthens Trial Capacity in Canada
We are pleased to share a new publication from the NMD4C Clinical Trial Network led by Kerri Lynn Schellenberg, Homira Osman, Maria Masnata, Rhiannon Hicks, Corinne Kagan, Ana Stosic, Stacey Lintern, Erin Beattie, Drs. Hanns Lochmüller, Craig Campbell, and Jean K Mah. This work focuses on the implementation of a coordinated Canadian neuromuscular clinical trial network to enhance trial readiness, capacity, and access in rare disease research.
Canadian-Led Phase II Studies Advance Vamorolone Evidence in Duchenne Muscular Dystrophy
NMD4C investigators contributed to two phase II studies evaluating vamorolone in boys with Duchenne muscular dystrophy across early childhood and adolescence, demonstrating safety, favorable pharmacokinetics, and potential efficacy. Led by Dr. Jean Mah and conducted across Canadian clinical trial sites with national and industry collaborators, the findings supported Health Canada approval of vamorolone as the first treatment for DMD in Canada. Leaders from both the clinical and patient advocacy communities, including Defeat Duchenne Canada, highlighted the impact of collaboration among patients, families, clinicians, and researchers in advancing care and improving access to new therapies.
Advancing AFC in Neuromuscular Medicine: Program Launch & September Workshop
The Royal College has approved National Training Standards for the AFC in Neuromuscular Medicine, creating a formal pathway to recognize enhanced competence with the DRCPSC credential. This designation establishes a national training standard, supports portable certification, and strengthens clinical capacity across Canada. PGME offices can now apply to offer accredited AFC programs, with a goal of five programs submitting applications by the end of 2026.