Nov 25 2024
Myogenesis Discussion Group Seminar | Decoding Muscle Loss: Cardiac Cachexia, tRNA Dysregulation, and Muscle Atrophy Pathways
Virtual
Nov 28 2024
Knowledge Exchange Session of the NMD4C Community of Practice for physiotherapists and occupational therapists
Virtual
Dec 03 2024
Spinal Muscular Atrophy Outcome Measures Workshop (English Language)
Montreal
Dec 03 2024
CPD-Accredited Webinar | Neuromuscular Mystery Case Rounds: A Distal Dilemma: Case Study of a Young Woman with Weakness in Hands and Feet
Virtual
Feb 04 2025
CPD-Accredited Webinar | Neuromuscular Mystery Case Rounds
Virtual
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CPD-Accredited Webinar | SMA Updates: Integrating real-world evidence into clinical decision making
The Neuromuscular Disease Network for Canada (NMD4C) and Muscular Dystrophy Canada (MDC) are pleased to invite you to a webinar on updates in clinical research in SMA. This webinar is primarily targeted at Canadian clinicians, academics, and trainees with an interest in neuromuscular disease. NMD4C and MDC are providing organizational and technical support. There is no involvement and influence from industry.
Moderator:
Agenda & Speakers:
- 5:00pm – 5:20pm: Dr. Jan Kirschner
- 5:20pm – 5:40pm: Dr. Laurie Lambert
- 5:40pm – 6:00pm: Discussion and questions
Objectives:
- Understand key elements of a registry that optimize the quality of its data and ensure that those data can be used for HTA and regulatory purposes: the Registry Evaluation and Quality Standards Tool (REQueST)
- Become familiar with the framework of SMArtCARE – a platform to collect real-life outcome data of patients with SMA
- Introduction to CADTH’s real world evidence guidance and other efforts in SMA
The NMD Rounds & Educational Webinars is a self-approved group learning activity (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada.