The Neuromuscular Disease Network for Canada


2021 Walk4MD Wrap-Up

Thanks to the dedicated teams and participants who registered and fundraised for The Tenaquip Foundation Walk4MD, as well as the amazing donors, sponsors, and research champions, this year’s event was a huge success! 


As of today, Muscular Dystrophy Canada (MDC)  has exceeded their fundraising goal and reached a total of $925, 158.28 with donations still coming in! The funds raised will be instrumental to delivering MDC’s basket of programs and services, funding life-changing equipment and technologies, investing in translational and clinical research, supporting next-generation clinicians and scientists, increasing education and awareness, influencing positive change, providing emotional support to those affected by NMD… and more.


This year, MDC focused their signature Walk event on research – in addition to a selected Research Champions Team, over 100 clinicians, researchers and students participated. The feedback from our community on the enhanced focus on research has been so positive.


If you missed the virtual event on Saturday, you can watch the replay here:





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NMD4C members awarded CIHR grants for oculopharyngeal dystrophy, spinal muscular atrophy research

The NMD4C is happy to share that two project applications from NMD4C members on oculopharyngeal dystrophy (OPMD) and spinal muscular atrophy (SMA)  have been awarded Canadian Institute of Health Research (CIHR) research grants in their recent round of funding decisions!

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MDC & NMD4C Fellowship Funding Awards Coming Soon

The NMD4C in partnership with Muscular Dystrophy Canada (MDC) are excited to share that we will be launching a competition later this year to award funding for two postdoctoral research and two clinical fellowships! 


August is SMA Awareness Month: See What’s Happening Around the Community

August is Spinal muscular atrophy (SMA) awareness month, and the NMD4C would like to take this time to recognize the work that our members and partners have contributed over the past year. While the network is involved in SMA-related activities year-round, August provides an opportunity to highlight this work and the impact it has on those affected by SMA.


Research Opportunity: PhD in Translational Mitochondrial/Stem-Cell Research at the uOttawa Centre for Neuromuscular Disease

The NMD4C are excited to share a new research opportunity in Translational Mitochondrial/Stem-Cell Research at the uOttawa Centre for Neuromuscular Disease. The research team is looking for a talented PhD student who is interested in studying how impairments in mitochondrial dynamics and function alter the metabolic profile and maintenance of muscle stem cells in patients with rare mitochondrial and neuromuscular diseases.


Myotonic Dystrophy: EPIC Functions at The Ottawa Hospital

Inspired by a DM family from Ottawa, The Ottawa Hospital (TOH) medical information team has designed a new Best Practice Advisories (BPA) for their electronic health record system EPIC, to keep DM patients safe throughout the hospital. 


European Neuromuscular Centre Themed Workshops

The NMD4C is excited to share that the European Neuromuscular Centre (ENMC) has announced a new initiative: Themed Workshops! The call for organisers who would like to apply for an ENMC workshop on this theme is now open and will run until September 30, 2021.