The Neuromuscular Disease Network for Canada

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Clinical Trial Concierge Web Page Launch

The NMD4C are excited to announce that the new clinical trial (CT) Concierge web page is now live! 

 

The role of the CT Concierge is to act as an information broker for clinical trials for all Canadian clinical care sites and to support the NMD4C community with consistent knowledge, awareness, and access to information across sites.

 

This position is independently objective and designed to serve as an impartial resource, not funded by industry and is for all NM stakeholders.

 

The Concierge role was created to strengthen the clinical trial landscape and be a resource to all key stakeholders. A key priority of the concierge will be to work with Investigators to develop solutions to barriers associated with bringing neuromuscular clinical trials to Canada.

 

Visit the Concierge web page here, and discover the benefits of working with the Concierge for investigators, patients and families, industry, and other stakeholders.

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NMD4C members awarded CIHR grants for oculopharyngeal dystrophy, spinal muscular atrophy research

The NMD4C is happy to share that two project applications from NMD4C members on oculopharyngeal dystrophy (OPMD) and spinal muscular atrophy (SMA)  have been awarded Canadian Institute of Health Research (CIHR) research grants in their recent round of funding decisions!

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MDC & NMD4C Fellowship Funding Awards Coming Soon

The NMD4C in partnership with Muscular Dystrophy Canada (MDC) are excited to share that we will be launching a competition later this year to award funding for two postdoctoral research and two clinical fellowships! 

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August is SMA Awareness Month: See What’s Happening Around the Community

August is Spinal muscular atrophy (SMA) awareness month, and the NMD4C would like to take this time to recognize the work that our members and partners have contributed over the past year. While the network is involved in SMA-related activities year-round, August provides an opportunity to highlight this work and the impact it has on those affected by SMA.

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Research Opportunity: PhD in Translational Mitochondrial/Stem-Cell Research at the uOttawa Centre for Neuromuscular Disease

The NMD4C are excited to share a new research opportunity in Translational Mitochondrial/Stem-Cell Research at the uOttawa Centre for Neuromuscular Disease. The research team is looking for a talented PhD student who is interested in studying how impairments in mitochondrial dynamics and function alter the metabolic profile and maintenance of muscle stem cells in patients with rare mitochondrial and neuromuscular diseases.

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Myotonic Dystrophy: EPIC Functions at The Ottawa Hospital

Inspired by a DM family from Ottawa, The Ottawa Hospital (TOH) medical information team has designed a new Best Practice Advisories (BPA) for their electronic health record system EPIC, to keep DM patients safe throughout the hospital. 

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European Neuromuscular Centre Themed Workshops

The NMD4C is excited to share that the European Neuromuscular Centre (ENMC) has announced a new initiative: Themed Workshops! The call for organisers who would like to apply for an ENMC workshop on this theme is now open and will run until September 30, 2021.