Clinical Trial Concierge Web Page Launch
The NMD4C are excited to announce that the new clinical trial (CT) Concierge web page is now live!
The role of the CT Concierge is to act as an information broker for clinical trials for all Canadian clinical care sites and to support the NMD4C community with consistent knowledge, awareness, and access to information across sites.
This position is independently objective and designed to serve as an impartial resource, not funded by industry and is for all NM stakeholders.
The Concierge role was created to strengthen the clinical trial landscape and be a resource to all key stakeholders. A key priority of the concierge will be to work with Investigators to develop solutions to barriers associated with bringing neuromuscular clinical trials to Canada.
Visit the Concierge web page here, and discover the benefits of working with the Concierge for investigators, patients and families, industry, and other stakeholders.
Read next...
New Course ‘Skills for Patient Oriented Research’ Added to ImPORTND Training Platform
The third and final module of our patient-oriented research training platform, ImPORTND, is now available! ‘Skills for Patient-Oriented Research’ teaches specific skills to help with patient-oriented research (POR), including how to develop an effective patient engagement plan, share and listen to patient stories, and evaluate project engagement.
Annual Neuromuscular Postdoctoral Research and Clinical Fellowships Funding Competition Now Open
Our 2024 annual funding competition to award postdoctoral fellowships in neuromuscular disease research, and clinical fellowship awards in neuromuscular medicine and electromyography is now open!
Curriculum Group Wraps up Inaugural Fellows’ Training Series
Our national neuromuscular lecture series launched last August 2022 has just wrapped up! The series consisted of a weekly (38 weeks) virtual Royal College CPD-accredited curriculum for neuromuscular fellows presented by subject-matter experts, developed by the curriculum working group together with the directors of fellowship programs across Canada.
ImPORTND – Training for Research Teams and Patient and Family Partners to Conduct Patient-Oriented Research in Neuromuscular Diseases
We are partnering with Muscular Dystrophy Canada (MDC) to offer free training and support services for research teams and patients to empower all members of the research team to conduct research that is informed by, and most meaningful to individuals living with neuromuscular disorders.
Press Release | Neuromuscular Disease Network for Canada Awarded 5-Year Grant from CIHR-IMHA and Funding from MDC to Strengthen Canadian Neuromuscular Research and Care
The NMD4C has received a network grant from CIHR-IMHA and matched funding from MDC, providing funding of $400 000 per year for five years to strengthen the care, research and treatment of neuromuscular diseases for all Canadians.
