CNDR Officially Launches Canadian FSHD Dataset to Support Research and Therapy Readiness
The Canadian Neuromuscular Disease Registry (CNDR) is excited to announce the official launch of its new Facioscapulohumeral Muscular Dystrophy (FSHD) dataset this fall.
“This addition enhances our ability to directly support our CNDR sites in collecting high-quality, real-world data that drives FSHD research, expands knowledge, and supports future therapy readiness for individuals living with FSHD across Canada. We look forward to working closely with clinicians, researchers, and the FSHD community to deepen our understanding of the disease and strengthen coordination between research and clinical care nationwide.”
– Dr. Lisa Marie Langevin, Clinical Program Manager, Canadian Neuromuscular Disease Registry (CNDR)
Following previous updates on CNDR’s FSHD initiatives, NMD4C looks forward to seeing the continued impact of the new dataset on research and care for individuals living with FSHD.
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Discover Neuromuscular Talent Across Canada
The NMD4C Neuromuscular Talent Pool is now live with new trainees! We invite supervisors and research groups to explore the Talent Pool to identify candidates whose skills, experience, and interests align with your work and upcoming positions. Trainees interested in being included in the Neuromuscular Talent Pool can register by completing the short form, uploading a CV and brief personal statement outlining their experience, interests, and career goals. For more information and to access the Talent Pool, please visit our website.
Join Us at the 2026 NMD4C Annual Meeting on 25 September
The 2026 NMD4C Annual Meeting will take place in Calgary on Friday, September 25, 2026. The agenda will feature a brief network update, trainee and early-career recognitions, flash talks, a health economics research showcase, and a series of cross‑disciplinary and parallel clinical/pre‑clinical discussion sessions to explore key topics, including advocacy and therapy access, strategies to sustain and strengthen pre-clinical programs, and network sustainability and strategic planning.