CNDR Officially Launches Canadian FSHD Dataset to Support Research and Therapy Readiness
The Canadian Neuromuscular Disease Registry (CNDR) is excited to announce the official launch of its new Facioscapulohumeral Muscular Dystrophy (FSHD) dataset this fall.
“This addition enhances our ability to directly support our CNDR sites in collecting high-quality, real-world data that drives FSHD research, expands knowledge, and supports future therapy readiness for individuals living with FSHD across Canada. We look forward to working closely with clinicians, researchers, and the FSHD community to deepen our understanding of the disease and strengthen coordination between research and clinical care nationwide.”
– Dr. Lisa Marie Langevin, Clinical Program Manager, Canadian Neuromuscular Disease Registry (CNDR)
Following previous updates on CNDR’s FSHD initiatives, NMD4C looks forward to seeing the continued impact of the new dataset on research and care for individuals living with FSHD.
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Save the Date: 2027 NMD4C-RARE.Qc Basic Science Research Summer School
NMD4C and RARE.Qc are pleased to announce the 2027 NMD4C–RARE.Qc Basic Science Research Summer School, will take place May 12-14, 2027, at the Université du Québec à Trois-Rivières (UQTR). The Summer School will bring together graduate students, postdoctoral fellows, and early-career researchers for hands-on training workshops, scientific lectures, trainee presentations, networking opportunities, and engagement with leading experts in neuromuscular and rare disease research.
Now Open: 2027 Postdoctoral Research Fellowship Funding Competition
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Congratulations to our 2026 Collaborative Research Training Award Recipients!!!
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