Defeat Duchenne Canadian Conference 2021: Addressing Duchenne muscular dystrophy (DMD) Standards of Care in Canada
The Neuromuscular Disease Network for Canada (NMD4C) in partnership with Jesse’s Journey and Muscular Dystrophy Canada (MDC), is proud to announce the inaugural Defeat Duchenne Canadian Conference, the first national summit solely focused on Duchenne muscular dystrophy (DMD) for health care providers across Canada.
The theme for this year’s virtual event is DMD standards of care (SoC). This three-part conference will bring together subject matter experts from pediatric and adult care for a comprehensive overview of the Canadian adaptation to the international DMD care considerations published in 2018.
What: Defeat Duchenne Canadian Conference: Addressing DMD Standards of Care in Canada
Who should attend: Multidisciplinary health care professionals involved in the care of DMD patients.
Session 1 (of 3): The first session will focus on the following DMD topics:
• Endocrinology management and bone health
• Cardiac management
• Pulmonary management
Friday, June 18, and Saturday, June 19, 2021, from 11 a.m. – 2 p.m. EDT each day. The second and third sessions will take place in September and December – stay tuned for registration later in the year.
Where: Online (Whova + Zoom)
We hope you and your team will join Jesse’s Journey and our partners as we build the future for Duchenne muscular dystrophy in Canada through research and collaboration.
First session of the three-part virtual conference starts June 18 and 19, 2021. Learn more about the sessions and speakers, and register today: www.dmdcanadianconference.com
Read next...
Muscular Dystrophy Canada Launches Initiative to Improve Genetic Testing Access for Myotonic Dystrophy
Muscular Dystrophy Canada is thrilled to launch an innovative initiative designed to tackle the diagnostic hurdles experienced by individuals with myotonic dystrophy.
New Content Available in LEARNMD
LEARNMD is the NMD4C’s online educational platform, offering talks and sessions on a wide range of neuromuscular topics presented by leading clinical and scientific experts worldwide. We’re excited to share what’s new on LEARNMD in February 2025!
Quebec Network RĂ©seau QuĂ©bĂ©coise de l’Amyotrophie Spinale Joins NMD4C as Community of Practice Sub-Group
We are thrilled to announce that the RQAS, a network uniting rehabilitation clinicians across Quebec to advance the care of people with Spinal Muscular Atrophy has officially become a sub-group Community of Practice of the NMD4C
NMD4C 2024 Year in Review
This year in review outlines a collection of achievements from the network over the past year.
NMD4C and MDC Award Fellowship Funding in NMD Research and Medicine
Together the Neuromuscular Disease Network for Canada (NMD4C) and Muscular Dystrophy Canada (MDC) are excited to announce the 2025 recipients of our neuromuscular fellowship funding competition to award postdoctoral fellowships in neuromuscular disease (NMD) research and clinical fellowships in neuromuscular medicine and electromyography!
NMD4C Basic Science Trainee Committee Provides Leadership Opportunity for Next Generation of Neuromuscular Researchers
The newly-formed Basic Science Trainee Committee represents the interests of trainees within the network, offering an opportunity for professional growth for future leaders in neuromuscular research.