The Neuromuscular Disease Network for Canada


Defeat Duchenne Canadian Conference 2021: Addressing Duchenne muscular dystrophy (DMD) Standards of Care in Canada

The Neuromuscular Disease Network for Canada (NMD4C) in partnership with Jesse’s Journey and Muscular Dystrophy Canada (MDC), is proud to announce the inaugural Defeat Duchenne Canadian Conference, the first national summit solely focused on Duchenne muscular dystrophy (DMD) for health care providers across Canada.

The theme for this year’s virtual event is DMD standards of care (SoC). This three-part conference will bring together subject matter experts from pediatric and adult care for a comprehensive overview of the Canadian adaptation to the international DMD care considerations published in 2018.

What: Defeat Duchenne Canadian Conference: Addressing DMD Standards of Care in Canada

Who should attend: Multidisciplinary health care professionals involved in the care of DMD patients.

Session 1 (of 3): The first session will focus on the following DMD topics:

• Endocrinology management and bone health
• Cardiac management
• Pulmonary management

Friday, June 18, and Saturday, June 19, 2021, from 11 a.m. – 2 p.m. EDT each day. The second and third sessions will take place in September and December – stay tuned for registration later in the year.

Where: Online (Whova + Zoom)

We hope you and your team will join Jesse’s Journey and our partners as we build the future for Duchenne muscular dystrophy in Canada through research and collaboration.

First session of the three-part virtual conference starts June 18 and 19, 2021. Learn more about the sessions and speakers, and register today:


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