Defeat Duchenne Canadian Conference 2021: Addressing Duchenne muscular dystrophy (DMD) Standards of Care in Canada

The Neuromuscular Disease Network for Canada (NMD4C) in partnership with Jesse’s Journey and Muscular Dystrophy Canada (MDC), is proud to announce the inaugural Defeat Duchenne Canadian Conference, the first national summit solely focused on Duchenne muscular dystrophy (DMD) for health care providers across Canada.

The theme for this year’s virtual event is DMD standards of care (SoC). This three-part conference will bring together subject matter experts from pediatric and adult care for a comprehensive overview of the Canadian adaptation to the international DMD care considerations published in 2018.

What: Defeat Duchenne Canadian Conference: Addressing DMD Standards of Care in Canada

Who should attend: Multidisciplinary health care professionals involved in the care of DMD patients.

Session 1 (of 3): The first session will focus on the following DMD topics:

• Endocrinology management and bone health
• Cardiac management
• Pulmonary management

Friday, June 18, and Saturday, June 19, 2021, from 11 a.m. – 2 p.m. EDT each day. The second and third sessions will take place in September and December – stay tuned for registration later in the year.

Where: Online (Whova + Zoom)

We hope you and your team will join Jesse’s Journey and our partners as we build the future for Duchenne muscular dystrophy in Canada through research and collaboration.

First session of the three-part virtual conference starts June 18 and 19, 2021. Learn more about the sessions and speakers, and register today: www.dmdcanadianconference.com

Conference_Social_FB

Read next...

NMD4C launches early career awards for 2022.

NMD4C Early Career Award Nominations Now Open

This initiative will allow NMD4C early-career members to be nominated for one of four awards, celebrating excellence and contribution to the neuromuscular field in both clinical and basic science streams.

MDC-grant-plan-2022

Clinical and Postdoctoral Research Fellowship Funding Competition from NMD4C, MDC, CSCN Now Open!

The NMD4C, in partnership with Muscular Dystrophy Canada (MDC) is now accepting applications for Post-doctoral Research Fellowships and Clinical Fellowships! These competitions are now open, and will close on November 14, 2022.

National Neuromuscular Lecture Series

National Neuromuscular Lecture Series Provides Training Opportunity for Neuromuscular Clinical Fellows

The NMD4C curriculum working group is pleased to share that the inaugural “National Neuromuscular Lecture Series” kicked off this August 12, 2022. This year-long training curriculum for current Canadian neuromuscular fellows has been developed in consultation with the directors of fellowship programs across Canada. The group decided on 41 topics which constitute a comprehensive neuromuscular knowledge base and identified subject-matter experts from across the country to deliver the weekly lectures.

imPORTND - soft launch image

imPORTND Patient-Oriented Research Training for Neuromuscular Disease Seeks Research Teams for Testing

The NMD4C is excited to introduce our online training platform “imPORTND”, created to help scientists engage with patient partners in research. These modules are designed for all neuromuscular research team members including researchers, staff, and patient partners. imPORTND has been co-developed with a team of expert patient partners, clinicians, and researchers, and offer two modules to help scientists engage with patient partners in research. It is the first patient-oriented research training that focuses specifically on neuromuscular disease.

Myotonic dystrophy foundation logo

2023 Myotonic Dystrophy Foundation Early Career Research Grant

The MDF will issue up to two two-year awards of up to $380,000 at $190,000 per award for early career scholars in the DM field for projects that focus on basic, translational and/or clinical research or care projects in myotonic dystrophy.

welcome to the team - Kevin LaFleur

NMD4C Hire Research Software Developer

The NMD4C are pleased to announce the hiring of research software developer Kevin LaFleur as the most recent addition to the network’s biobanking team! Kevin will develop the technical infrastructure for a centralized Canadian neuromuscular biobanking catalogue.