The Neuromuscular Disease Network for Canada


Dr. Bernard Brais Featured in The Economist Report on Navigating Rare Neurological Diseases

NMD4C Investigator Dr. Bernard Brais is featured as a Canadian expert in The Economist Business Intelligence Unit’s recent report Navigating Rare Neurological Diseases: Meeting the Challenge for Policy Makers, Patients and Healthcare Professionals.

The report aims to distill and illuminate the policy challenges that rare diseases face, focusing particularly on rare neurological diseases (RNDs). Using data and consultation from North American and European experts, the report explores methods to address the policy challenges identified.

Dr. Brais provides perspective and expertise on the Canadian landscape of rare neurological disease, highlighting among other topics the access to diagnosis and treatment for patients, and the role of non-profit advocacy and support groups in providing resources and patient support.


The full report is available to read now!

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Dr. Hanns Lochmüller Presenting at Can-GARD / CCMG The Leading Strand Webinar Series

The Leading Strand webinar series is designed for genetics health professionals, led by the Canadian College of Medical Genetics and co-sponsored by Can-GARD. Speakers will be translation-focused researchers, clinicians and innovators. The series will help attendees anticipate, access, and apply new approaches and technologies for patient care.

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Research Highlight: Study on COVID‑19 in Children With Neuromuscular Disorders

The NMD4C would like to highlight a paper from the Neuromuscular Working Group of the Spanish Pediatric Neurology Society, who have recently published a study which aims to describe the clinical characteristics and outcome of COVID-19 in the pediatric NMD patient population.


The BRAIN Conference | Two-day online conference

BRAIN and its Guarantors are excited to announce a new venture: The BRAIN Conference! This two-day conference will feature a selection of fantastic speakers, invited by our conference Chairs from around the globe.


January 2021 newsletter

1) New NMD4C monthly webinar series 2) Update on upcoming conferences 3) Two research participation opportunities 4) New research from NMD4C participants 5) Member spotlight on steering committee member Dr. James Dowling.


NMD4C Year in Review

The NMD4C is proud to be where we are today. It is no easy task to unite a diverse community of stakeholders under a clear and united vision; even more difficult is to do so with the unique challenges every single member of our community faced during 2020.


MDC Annual Neuromuscular ‘Seed Grant’ Competition Launch

MDC is very excited to announce that our Annual Neuromuscular ‘Seed Grant’ Competition has launched and are now accepting applications until Feb 2, 2021 for Translational Science Seed Grants and Clinical Health Management Grants.