The Neuromuscular Disease Network for Canada

funder-logos_nmd4c

Final Session of the Defeat Duchenne Canadian Conference Wrap-Up and Thank You

Thank you to everyone able to join us for the 2021 Defeat Duchenne Conference Series addressing Duchenne Muscular Dystrophy Standards of Care in Canada. Jesse’s Journey in partnership with NMD4C and MDC are so appreciative of all our speakers and conference chairs who dedicated their time and energy in developing the programs. We successfully generated insightful conversations and discussions on how we might address care gaps in Canada. We are now working towards publishing the proceedings from this conference series to help shape the future of care for your patients and our families living with Duchenne in Canada.

 

A total of 218 participants and 55 speakers attended the conference over the three sessions, and we are extremely grateful for all of the questions, insights and discussions we received from our audience during the conference. All of the sessions were recorded exclusively for educational purposes, and are available on request. Please contact for more information.

 

On behalf of the NMD4C, Jesse’s Journey and MDC, we would like to thank our conference committee, chairs, speakers and panelists who have joined us over the inaugural Defeat Duchenne Canadian Conference:

 

Our Conference Committee and Chairs:

Dr. Kathryn Selby, Dr. Hanns Lochmüller, Dr. Craig Campbell, Dr. Nicholas Chrestian, Dr. Homira Osman, Dr. Erin Beattie, Nicola Worsfold, Rochelle ten Haaf, James Davis, and Kate Miller

 

Session 1 Speakers and Panelists: Endocrinology, Cardology and Respirology Management

Drs. Reshma Amin, Jeremy Road, David Zielinski, and Marta Kaminska (Respirology)

Drs. Derek Human, Mariana Lamacie, Emilie Jean-St-Michel, Michael Khoury, and Andres Klein (Cardiology)

Drs. Leanne Ward, Sabrina Gill, Stasia Hadjiyannakis, and Annie Sbrocchi (Endocrinology)

 

Session 2 Speakers and Panelist: Neuromuscular Management and Transition from Pediatrics to Adult care

Drs. Kathy Selby, Hanns Lochmüller, Craig Campbell, James Dowling, Hugh McMillan, Eric Hoffman, Suzanne Salsman, Mike Berger, Kerri Schellenberg, and Nadim Jiwa. Dr. Homira Osman (MDC), Alex Printis (dietitian) and Nicola Worsfold (Jesse’s Journey) (Neuromuscular)

Drs. Laura McAdam, Colleen O’Connell, Monique Taillon, Sandrine Boueilh, Hana Alazem, and Lindsay Hubenig. Bhavnita Mistry (research manager/coordinator), Debra Chiabai and Nancy Klinkhamer (DMD parents), and Mike Klinkhamer (adult with DMD) (Transition care)

 

Session 3 Speakers and Panelist: Orthopedic, Rehabilitation, Psychosocial Management and Duchenen and the Brain

Drs. Chris Reilly, Patricia Larouche, and Hernan Gonorazky and Fatima Vido-Vicchio (physiotherapist) (Orthopedics)

Drs. Sue Dojeiji, Jordan Sheriko, Anna McCormick, and Michael Berger. Charise MacDonald (occupational therapist), Sarah Moore (therapeutic recreation specialist), Khalid Mahdi (adult with DMD), and Nicola Worsfold (Jesse’s Journey) (Rehabilitation)

Professor Francesco Muntoni, Dr. Veronica Hinton, Dr. Hugh McMillan, and Debra Chiabai (DMD parent) (Duchenne and the Brain)

Drs. Jean Mah, Stephanie Plamondon, Natalie Truba, and Amy McPherson. Camara van Breemen (nurse practitioner), Zoe Scwartz (pediatric social worker), and Debra Chiabai (DMD parent) (Psychosocial)

Conference_Social_TW_V213

Read next...

nmd4C 2022 plans

NMD4C Plans for 2022

The advent of 2022 marks the NMD4C’s third year of operations, and the network would like to take this time to share our plans for the year to come! Thank you to our steering committee, our working group members and leaders, and our partner MDC who are an integral part of every working group! We are grateful for the opportunity to serve the Canadian neuromuscular community and will continue to work on the behalf of all neuromuscular stakeholders in the coming year.

Samar Muslemani EC Blog

Read Occupational Therapist Samar Muslemani’s Early Career Blog

Read the latest early career blog post, from occupational therapist and NMD4C member Samar Muslemani.

RS21FellowshipAnnouncementFINAL-E

NMD4C and MDC Announce Recipients of Post-doctoral Research Fellowships

The NMD4C together with MDC are excited to announce the recipients of a funding competition which awarded national post-doctoral fellowships in neuromuscular research.

Biobank Job Posting (2)

Job Opportunity: Help Build the Neuromuscular Biobanking Framework in Canada

The NMD4C is excited to share a job opportunity for a Research Software Developer at McGill University! This is an opportunity for a developer to join our biobanking working group lead Dr. Jason Karamchandani and his team at the C-BIG repository to work on neuromuscular biobanking projects including the NMD4C’s virtual biobanking catalogue.

HebahQashaqri EC Blog

Read Dr. Hebah Qashqari’s Early Career Blog

Read the latest early career blog post, from NMD4C member Dr. Hebah Qashqari. 

Hanns_KarpatiAward

Dr. Hanns Lochmüller Recipient of the Dr. George Karpati Award for Researcher of the Year

The NMD4C are excited to share that the network’s lead investigator Dr. Hanns Lochmüller is the recipient of Muscular Dystrophy Canada’s Dr. George Karpati Award for Researcher of the Year! This prestigious award is presented annually to an exemplary neuromuscular clinician or researcher who has made a significant contribution to neuromuscular research, or the advancement of care of people with neuromuscular disorders.