imPORTND Patient-Oriented Research Training for Neuromuscular Disease Seeks Research Teams for Testing
The NMD4C is excited to introduce our online training platform “imPORTND”, created to help scientists engage with patient partners in research. These modules are designed for all neuromuscular research team members including researchers, staff, and patient partners.
imPORTND has been co-developed with a team of expert patient partners, clinicians, and researchers, and offer two modules to help scientists engage with patient partners in research. It is the first patient-oriented research training that focuses specifically on neuromuscular disease.
Acknowledging that all research participants come with different experiences and knowledge, the training platform is designed for users to decide what their own and their team learning needs are, and to select those activities which will be most helpful.
The NMD4C is seeking research teams to test the first two modules of the training platform before it fully launches later this fall. Please contact Patricia Mortenson or James Davis at or to sign up!
Read next...
Could You Be Our Next Awardee? Meet Jules Granet, NMD4C’s 2026 Publication of the Year Awardee
Nominations are open till by 18 January 2027!
In 2026, Jules Granet, a PhD Candidate at McGill University and trainee in Dr. Natasha Chang’s laboratory received an NMD4C Publication of the Year Award for research investigating how muscle stem cell dysfunction contributes to impaired muscle regeneration in Duchenne muscular dystrophy. Nominate yourself or a neuromuscular colleague whose research, clinical care, leadership, advocacy, or community contributions deserve to be recognized.
Early Bird Registration Now Open: 8th Ottawa International Conference On Neuromuscular Disease & Biology
We are happy to announce that early bird registration is now open for the 8th Ottawa International Conference On Neuromuscular Disease & Biology which will be held on October 14-16, 2027 at the Fairmont Château Laurier in Ottawa, Canada. Now under the leadership of NMD4C Investigators; Dr. Mireille Khacho, Dr. Hanns Lochmuller, Dr. Bernard Jasmin, and Dr. Rashmi Kothary.
NMD4C Launches Pre‑Clinical Expertise & Resource Database of Canadian Neuromuscular Labs
NMD4C announces the launch of its Pre-Clinical Expertise & Resources Database, a resource designed to showcase neuromuscular research expertise, specialized techniques, unique resources, and training opportunities across Canada.