imPORTND Patient-Oriented Research Training for Neuromuscular Disease Seeks Research Teams for Testing
The NMD4C is excited to introduce our online training platform “imPORTND”, created to help scientists engage with patient partners in research. These modules are designed for all neuromuscular research team members including researchers, staff, and patient partners.
imPORTND has been co-developed with a team of expert patient partners, clinicians, and researchers, and offer two modules to help scientists engage with patient partners in research. It is the first patient-oriented research training that focuses specifically on neuromuscular disease.
Acknowledging that all research participants come with different experiences and knowledge, the training platform is designed for users to decide what their own and their team learning needs are, and to select those activities which will be most helpful.