International Myotonic Dystrophy Awareness Day 2022 to Take Place September 15th
The NMD4C alongside Muscular Dystrophy Canada (MDC) are proud to be members of a global alliance of over 50 myotonic dystrophy-focused organizations who have once again united to celebrate Myotonic Dystrophy Families Day this past July 23rd, and International Myotonic Dystrophy Awareness Day on September 15th, 2022.
Read the full press release from the Myotonic Dystrophy Foundation to learn more about the 2022 awareness day!
In addition to the Alliance’s core mission of raising myotonic dystrophy awareness among the general population, many members of the Global Alliance for Myotonic Dystrophy Awareness are also leading efforts in two specific areas of focus to maximize our impact in 2022:
1. Awareness and education among clinical care teams,
2. Clinical trial readiness for participants.
Read the original press release from the inaugural Awareness Day to learn more about this alliance!
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NMD4C Website Updates: Resource & Training Hubs
We’re excited to share some updates to the NMD4C website! We’ve created two hubs, the Resource Hub and the Training Hub to make it easier for all our members to find e-learning tools, and research resources!
Scheduled Maintenance
Our websites and training platforms will be undergoing maintenance from December 22 – 26 and 29 – 31, 2025. During this period, access may be limited until the work is complete. We appreciate your patience while this maintenance is carried out. If you require assistance during these times, please contact our Communications Coordinator, Lola Owoeye.
Applications are now open for the 2026 NMD4C Basic Research Summer School!!!
Application Deadline: January 27, 2026 | We are excited to announce that applications are now open for our third Basic Research Summer School for neuromuscular research trainees! Led by Dr. Mireille Khacho, the 2026 NMD4C Basic Research Summer School will be held from June 8th to 10th at the University of Ottawa.