International Myotonic Dystrophy Awareness Day 2022 to Take Place September 15th

The NMD4C alongside Muscular Dystrophy Canada (MDC) are proud to be members of a global alliance of over 50 myotonic dystrophy-focused organizations who have once again united to celebrate Myotonic Dystrophy Families Day this past July 23rd, and International Myotonic Dystrophy Awareness Day on September 15th, 2022.

 

Read the full press release from the Myotonic Dystrophy Foundation to learn more about the 2022 awareness day!

 

In addition to the Alliance’s core mission of raising myotonic dystrophy awareness among the general population, many members of the Global Alliance for Myotonic Dystrophy Awareness are also leading efforts in two specific areas of focus to maximize our impact in 2022:

1. Awareness and education among clinical care teams,
2. Clinical trial readiness for participants.

 

Read the original press release from the inaugural Awareness Day to learn more about this alliance!

 

Global Alliance for DM Awareness Announces Areas of Focus for 2022

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2026 Basic Research Summer School

Applications are now open for the 2026 NMD4C Basic Research Summer School!!!

Application Deadline: January 27, 2026 | We are excited to announce that applications are now open for our third Basic Research Summer School for neuromuscular research trainees! Led by  Dr. Mireille Khacho, the 2026 NMD4C Basic Research Summer School will be held from June 8th to 10th at the University of Ottawa.

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Call for Applications: Join the NMD4C Basic Science Trainee Committee (BSTC)

We are now accepting applications from graduate students, research trainees, and postdoctoral fellows working in neuromuscular labs in Canada.

NMD4C's BSTC launches SOP database

Basic Science Trainee Committee Launches Pre-Clinical Science Standard Operating Procedures

We’re pleased to announce the launch of the BSTC Standard Operating Procedures (SOPs), now available through the NMD4C Resource Hub. These SOPs provide standardized guidance for laboratories, clinics, and research programs across Canada, supporting consistent, high-quality neuromuscular care and research. Explore the full SOP Library and other open-access resources designed to advance collaboration and strengthen practices nationwide.