Jesse’s Journey Becomes Defeat Duchenne Canada
New Name – Same Mission: Jesse’s Journey Becomes Defeat Duchenne Canada
Jesse’s Journey, Canada’s only national charity dedicated to ending the most common and most fatal form of muscular dystrophy has become Defeat Duchenne Canada. The London-based organization has united families, raised awareness and funded almost $15 million in research projects around the world. After more than 30 years under the banner of Jesse’s Journey, Canada’s leading fundraiser for Duchenne muscular dystrophy has partnered with its vibrant community members to choose a new name that reflects their nationwide impact.
Read the full press release from Defeat Duchenne Canada here.
About Defeat Duchenne Canada
Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy.
Their goal is to provide leadership in research, advocacy and support to ensure our boys can live long and active lives.
The NMD4C are excited to continue our partnership with Defeat Duchenne Canada, and are grateful to have the opportunity to work together to raise the standards of care for NMDs and access to therapies across Canada.
Check out the three-part Defeat Duchenne Canadian Conference Series addressing Duchenne Muscular Dystrophy Standards of Care in Canada, hosted in 2021 by Defeat Duchenne Canada in collaboration with MDC and the NMD4C.
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Discover Neuromuscular Talent Across Canada
The NMD4C Neuromuscular Talent Pool is now live with new trainees! We invite supervisors and research groups to explore the Talent Pool to identify candidates whose skills, experience, and interests align with your work and upcoming positions. Trainees interested in being included in the Neuromuscular Talent Pool can register by completing the short form, uploading a CV and brief personal statement outlining their experience, interests, and career goals. For more information and to access the Talent Pool, please visit our website.
Join Us at the 2026 NMD4C Annual Meeting on 25 September
The 2026 NMD4C Annual Meeting will take place in Calgary on Friday, September 25, 2026. The agenda will feature a brief network update, trainee and early-career recognitions, flash talks, a health economics research showcase, and a series of cross‑disciplinary and parallel clinical/pre‑clinical discussion sessions to explore key topics, including advocacy and therapy access, strategies to sustain and strengthen pre-clinical programs, and network sustainability and strategic planning.