The Neuromuscular Disease Network for Canada

funder-logos_nmd4c

Launch of ENMC Mid-Career Mentoring Programme

One of the key pillars of the NMD4C is to empower and support our neuromuscular early-career members to help them grow as future thought leaders, innovators, and experts in the neuromuscular community. Although the NMD4C is a network that exists to serve the Canadian NM community, we believe that an important part of research progress consists of collaboration and learning on a global scale.

 

The European Neuromuscular Centre (ENMC) is a worldwide network whose mission is to establish international collaboration of experts in the world, to facilitate the establishment of consortia and to foster basic research and treatment development for patients with a neuromuscular condition.

 

The ENMC has long been involved in efforts to support junior researchers and clinicians in establishing a network in the NM community through their Early-Career Programme (formerly known as the Young Scientist Programme). In 2020, the ENMC identified a need for a specific leadership programme in the NMD field for strongly motivated scientists and clinicians, who already have a proven track record in neuromuscular science.

Building from the success of the ENMC Early-Career Programme, the ENMC is proud to launch a new and ambitious Mid-Career Mentoring Programme.

This programme is conceived to support and prepare talented and committed neuromuscular specialists for transdisciplinary, cooperative leadership, thereby promoting innovation and progress of future neuromuscular research. These individuals will be at the stage in their careers where they are developing their own research plans and are establishing their own teams and collaborative networks, have already completed their PhD and one or more post-doc positions. Scope of the mentoring programme is to empower these mid-career professionals and prepare them for independent leadership, most importantly increasing their chances of reaching high positions where they have the possibility to open up tenure-track perspectives for the next generations.

 

The NMD4C are excited to share that three of our Investigators will be participating in this programme as mentors, and we encourage any of our mid-career members who are interested in this programme to apply as mentees before the July 1st deadline!

 

Read more about the criteria for becoming a successful ENMC Mentee candidate here: Guidelines – ENMC.

 

For our early-career members, the ENMC also continues to provide an opportunity for younger members of the NMD research and clinical community to participate in ENMC workshops through their Early-Career Programme.

This programme helps junior researchers connect with established scientists and clinicians in the neuromuscular field and gives them a chance to obtain state-of-the art knowledge on research topics. The Early-Career Programme allows predominantly PhD students, post-docs and early-career clinicians to participate in ENMC workshops of their choice where they listen, present their research, discuss and report on the workshop outcomes.

 

 

With the birth of the Mid-Career Mentoring Programme and the continuation of the Early-Career programme, the ENMC provides learning support to the entire spectrum of rising stars in the neuromuscular field, from PhD students to research group leader/clinical unit heads.

 

More information about the ENMC programmes for early- and mid-career researchers, can be found on the ENMC website (www.enmc.org).

About the ENMC from Anymazed on Vimeo.

 

 

ENMC logo topkwaliteit

Read next...

Fellowship Map_news

Clinical Research Curriculum Development Working Group Update

The NMD4C is committed to educating the next generation of NMD stakeholders, and endeavors to optimize the training of neuromuscular clinicians in Canada through standardization of a fellowship curriculum, preparing an application for an Area of Focused Competency (AFC) by the Royal College of Physicians and Surgeons of Canada in the field of Neuromuscular Medicine, and holding quarterly CPD-accredited NM Mystery Case Rounds.

image from https://fshoq.com/

Expert Patient Capacity Building Update

The NMD4C is involved in several activities under the provision of our Training and Education initiatives, including the establishment of expert patient capacity building (EPCB) resources for Canadian NMD patients. The EPCB team’s work involves the promotion of patient engagement in all aspects of NMD, and the development of easy-to-use and accessible Canadian NMD training modules and resources for both patients and researchers to support patient-oriented neuromuscular research in Canada.

medicine capsules spilling out of a jar

Response to the Federal Government on Building a National Strategy for High-Cost Drugs for Rare Diseases

The Neuromuscular Disease Network for Canada (NMD4C) in partnership with Muscular Dystrophy Canada (MDC)  and The Foundation for Gene & Cell Therapy (Jesse’s Journey) are pleased to provide the following summary of our recommendations for consideration into the National Strategy for Rare Diseases.

MDC_ImagineAccredxcf

MDC Press Release | Muscular Dystrophy Canada Awarded Imagine Canada Accreditation

This prestigious accreditation is an official complement to the extraordinary scope of work MDC does to support the neuromuscular community, influence positive change with advocacy and fund basic and translational research in the field of NMD.

logos-treat-nmd-logo

NMD4C steering committee member Dr. Jim Dowling appointed Chair of the executive committee of TREAT-NMD

The NMD4C would like to congratulate our Steering Committee member Dr. Jim Dowling on his appointment as Chair of the executive committee of TREAT-NMD!

image001

Rare Disease Day 2021 Recap

Observed annually on the last day of February, Rare Disease Day seeks to raise awareness among the general public, as well as policymakers, public authorities, industry representatives, scientists, and health professionals.   Due to the COVID-19 pandemic, activities this year were mainly virtual. But that did not stop patients, caregivers, researchers, clinicians, advocates and patient…