Muscular Dystrophy Canada, Canadian Neuromuscular Disease Registry, NMD4C partner to ensure Canadians can access Facioscapulohumeral muscular dystrophy (FSHD) cure(s)

Published: 05 March 2023

Muscular Dystrophy Canada and the Canadian Neuromuscular Disease Registry are working together with NMD4C  to introduce a patient registry and collect information to build a Canada-wide core dataset for Facioscapulohumeral muscular dystrophy.

Learn more about this project at: https://muscle.ca/2023/02/27/mdc-cndr-nmd4c-partner-to-ensure-canadians-can-access-fshd-cures/.

text reading Canadian FSHD registry, with icons in centre of page and CNDR and MDC logos underneath.

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