NMD4C steering committee member Dr. Jodi Warman Chardon awarded Tier 2 Clinical Research Chair

We are very proud to congratulate our steering committee member, Dr. Jodi Warman Chardon, for her new appointment at the University of Ottawa! Dr. Warman Chardon is now the Tier 2 Clinical Research Chair in Diagnosis and Discovery Pipeline for Patients with Genetic Neuromuscular Disease. She was previously the Junior Clinical Research Chair in Novel Gene Discovery in Neuromuscular Disease. This appointment is an award and an acknowledgement by her peers as an exceptional emerging researcher with the potential to lead in her field. Dr. Warman Chardon’s clinical research focuses on improved genomic and imaging studies for patients with inherited myopathies and neuromuscular diseases.

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SMA Outcome Measures Training for Physiotherapists and Occupational Therapists

To support the development and training on validated NMD outcome measures we are pleased to provide opportunities for physiotherapists and occupational therapists to attend training sessions for outcome measures.

Congratulations to the 2024 early career award winners. Dr Mireille Khacho and Dr Jean-Philippe Leduc Gaudet.

Congratulations to the 2024 NMD4C Early Career Awards Recipients

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Pediatric Rare Disease Clinical Trials and Treatment Network - RareKids-CAN

MICYRN Secures $20 Million Grant from CIHR for a Pediatric Rare Disease Clinical Trials and Treatment Network

The NMD4C are excited to share that MICYRN’s success in securing a $20 million grant from CIHR Institute of Genetics to support the development and execution of RareKids-CAN: Pediatric Rare Disease Clinical Trials and Treatment Network.

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CNDR Welcomes Dr. Hugh McMillan as New Pediatric Lead

CNDR warmly welcome Dr. Hugh McMillan as the new CNDR Pediatric Lead and are grateful for the wealth of knowledge, expertise, and leadership he will bring to the role.  

NMD4C Hires two new Coordinators - Zainab and Victoria

NMD4C Welcomes Two New Staff Members

The NMD4C recently welcomed two new members to the network coordination team! Marine Christin, PhD joins us as the new Pre-Clinical Science Coordinator, and Maria Masnata, PhD joins as the Clinical Trials & Community Practice Manager. 

Journal of neuromuscular diseases

Journal of Neuromuscular Diseases Celebrates 10-Year Anniversary with Commemorative Editorial

The January 2024 edition of the Journal of Neuromuscular Diseases (JND) marked the journal’s 10-year anniversary!