NMD4C: The Neuromuscular Disease Network for Canada

The NMD4C recently welcomed two new members to the network coordination team! Victoria Larocca, PhD joins us as the new Training and Curriculum Coordinator, and Zainab Adamji joins as the Outcome Measures and Natural History Coordinator. 

Victoria Larocca, PhD | Training and Curriculum Coordinator

Victoria is a dedicated knowledge mobilization specialist with a passion for advancing health research and education. She earned her Ph.D. and M.Sc. in Kinesiology and Health Science from York University in 2022 and 2018, respectively, following her Bachelor of Education from Brock University in 2016.

Throughout her academic journey, Victoria has immersed herself in health psychology and clinical research. With her experience and education in health research, Victoria is committed to advancing the education and curriculum for neuromuscular trainees as well as advancing the research conducted at Muscular Dystrophy Canada.

Zainab Adamji | Outcome Measures and Natural History Coordinator

Zainab is a dedicated knowledge mobilization specialist with a passion for translating research into practical applications and influencing policy. She earned her Honours B.Sc. in Biology, specializing in Biotechnology, from the University of Waterloo in 2020, followed by an MSc in Molecular Science from Toronto Metropolitan University in 2022. During her academic studies, Zainab researched lysosome dysfunction and its intricate impacts on organelle cross-talk. Zainab has supported numerous research and advocacy initiatives at Muscular Dystrophy Canada and has further honed her expertise through the MobilizeU knowledge mobilization certification program at York University.

Within her role at the NMD4C, Zainab works to coordinate NMD outcome measures, developing training modules and provide training on validated NMD outcome measures, and selecting patient-reported outcome measures to be captured in post-market surveillance patient registries.