Network’s Approach to Adapting Knowledge Translation Strategies for Neuromuscular Diseases: Knowledge Translation Canada Scientific Meeting

The network is excited to share that on behalf of the NMD4C Knowledge Translation team, Drs. Cynthia Gagnon and Homira Osman have had a poster presentation accepted for inclusion at the Knowledge Translation Canada (KT Canada) 2022 Virtual Scientific Meeting.

The poster presentation “A Network’s Approach to Adapting Knowledge Translation Strategies for Neuromuscular Diseases” focuses on the barriers and facilitators to knowledge translation (KT) for neuromuscular diseases, describing how some of these were amplified during the pandemic, and providing examples of effective KT activities that have improved access and uptake of information which raise standards of care and research, with particular focus on the application of the knowledge-to-action framework to address the needs and challenges of Spinal muscular atrophy (SMA).

Alongside the specific example of the knowledge-to-action framework in SMA, the key messages from the poster include:

Collaboration between clinicians, academics, researchers, patient partners is critical for planning, delivering, and implementing KT activities that intend to influence clinical and policy change.

A pan-Canadian network can fulfil an important role of knowledge broker and can help to address the limited, fragmented, and emerging evidence and clinical expertise.

The use of multi-faceted strategies for knowledge dissemination is important: webinars, social media, newsletters are effective ways to maximize engagement, reach and uptake of knowledge.

The full poster will be available on the KT Canada website after the event, so check back to see the full content!

KT Canada’s Virtual Scientific Meeting 2022

The KT Canada Virtual Scientific Meeting is held entirely online, running from May 4th to May 6th, 2022, with the theme “Developing and evaluating tailored dissemination strategies for different audiences: What have we learned from dissemination science during COVID-19?”. The presentations include 15-minute live oral presentations, and pre-recorded poster presentations. The full agenda is available on the KT Canada Scientific Meeting website; if you are interested in attending this virtual event, you can register online.

The goals of KT Canada are to improve how research results are communicated, develop a consensus on KT terminology and methods for measuring success, evaluate various KT approaches and to find ways to ensure that KT efforts have a lasting impact across the continuum of care by engaging health professionals, community members and various health decision-making groups.

NMD4C Knowledge Translation Strategy

The NMD4C KT strategy focuses on the development, dissemination, and implementation of KT products (including clinical care guidelines) tailored to various audiences with the objectives in pursuit of raising the standard of care for NMD and improving access to NMD therapies across Canada. More information about the NMD4C KT working group is available on the KT page of our website.

 

Knowledge Translation Canada logo

Read next...

welcome to the team - Kevin LaFleur

NMD4C Hire Research Software Developer

The NMD4C are pleased to announce the hiring of research software developer Kevin LaFleur as the most recent addition to the network’s biobanking team! Kevin will develop the technical infrastructure for a centralized Canadian neuromuscular biobanking catalogue.

Global Alliance for DM Awareness Announces Areas of Focus for 2022

International Myotonic Dystrophy Awareness Day 2022 to Take Place September 15th

The NMD4C alongside Muscular Dystrophy Canada (MDC) are proud to be members of a global alliance of over 50 myotonic dystrophy-focused organizations who have once again united to celebrate Myotonic Dystrophy Families Day this past July 23rd, and International Myotonic Dystrophy Awareness Day on September 15th.

Meet the Fellows - now live

Meet the Fellows Video Series

The NMD4C and MDC are excited to share a new videos series featuring five incredible fellows Drs. Emanuela Pannia, Rebecca Robertson, Collin Luk, Marianne Nury and Alasdair Rathbone.

Application for AFC in neuromuscular medicine approved by the Royal College

Area of Focused Competency in Neuromuscular Medicine Approved by Royal College of Physicians and Surgeons of Canada

The Neuromuscular Disease Network for Canada (NMD4C) are pleased to announce that on May 3rd, 2022, the Royal College of Physicians and Surgeons of Canada approved an application for neuromuscular medicine to be recognized as an area of focused competency (AFC) discipline. This recognition is a significant step in raising the standards of care for people affected by neuromuscular diseases in Canada.

Defeat Duchenne Canada's Clinical Trial Finder Tool

Defeat Duchenne Canada Launches New Clinical Trial Finder Tool

Defeat Duchenne Canada is proud to announce the launch of the first Clinical Trial Finder Tool for Duchenne and Becker muscular dystrophy in Canada.

KT infographic logo

Knowledge Translation Team Share Clinical Practice Guideline Infographic

The Knowledge Translation team are are glad to share an infographic of the clinical practice guideline “Promoting Sexuality and Intimate Relationships in Adults with a NMD in Occupational Therapy”