The Neuromuscular Disease Network for Canada


Network’s Approach to Adapting Knowledge Translation Strategies for Neuromuscular Diseases: Knowledge Translation Canada Scientific Meeting

The network is excited to share that on behalf of the NMD4C Knowledge Translation team, Drs. Cynthia Gagnon and Homira Osman have had a poster presentation accepted for inclusion at the Knowledge Translation Canada (KT Canada) 2022 Virtual Scientific Meeting.

The poster presentation “A Network’s Approach to Adapting Knowledge Translation Strategies for Neuromuscular Diseases” focuses on the barriers and facilitators to knowledge translation (KT) for neuromuscular diseases, describing how some of these were amplified during the pandemic, and providing examples of effective KT activities that have improved access and uptake of information which raise standards of care and research, with particular focus on the application of the knowledge-to-action framework to address the needs and challenges of Spinal muscular atrophy (SMA).

Alongside the specific example of the knowledge-to-action framework in SMA, the key messages from the poster include:

Collaboration between clinicians, academics, researchers, patient partners is critical for planning, delivering, and implementing KT activities that intend to influence clinical and policy change.

A pan-Canadian network can fulfil an important role of knowledge broker and can help to address the limited, fragmented, and emerging evidence and clinical expertise.

The use of multi-faceted strategies for knowledge dissemination is important: webinars, social media, newsletters are effective ways to maximize engagement, reach and uptake of knowledge.

The full poster will be available on the KT Canada website after the event, so check back to see the full content!

KT Canada’s Virtual Scientific Meeting 2022

The KT Canada Virtual Scientific Meeting is held entirely online, running from May 4th to May 6th, 2022, with the theme “Developing and evaluating tailored dissemination strategies for different audiences: What have we learned from dissemination science during COVID-19?”. The presentations include 15-minute live oral presentations, and pre-recorded poster presentations. The full agenda is available on the KT Canada Scientific Meeting website; if you are interested in attending this virtual event, you can register online.

The goals of KT Canada are to improve how research results are communicated, develop a consensus on KT terminology and methods for measuring success, evaluate various KT approaches and to find ways to ensure that KT efforts have a lasting impact across the continuum of care by engaging health professionals, community members and various health decision-making groups.

NMD4C Knowledge Translation Strategy

The NMD4C KT strategy focuses on the development, dissemination, and implementation of KT products (including clinical care guidelines) tailored to various audiences with the objectives in pursuit of raising the standard of care for NMD and improving access to NMD therapies across Canada. More information about the NMD4C KT working group is available on the KT page of our website.


Knowledge Translation Canada logo

Read next...

KT infographic logo

Knowledge Translation Team Share Clinical Practice Guideline Infographic

The Knowledge Translation team are are glad to share an infographic of the clinical practice guideline “Promoting Sexuality and Intimate Relationships in Adults with a NMD in Occupational Therapy”

Upcoming neuromuscular conferences

Upcoming Neuromuscular Conferences in 2022

This year we are excited to anticipate the return of in-person conferences, which provide an invaluable training and networking experience to all members of the neuromuscular community and which have been dearly missed over the past two years. In 2022, Canada will host several major neuromuscular conferences, both domestic and international. Please take a moment…

Dr. Emanuela Pannia EC Blog

Read NMD4C and MDC Postdoc Fellowship Recipient Dr. Emanuela Pannia’s Early-Career Blog

Read the latest early career blog post, from NMD4C and MDC Postdoc Fellowship Recipient Dr. Emanuela Pannia.

Clinical practice guideline in NMD infographic logo

Knowledge Translation Team Infographic “Consensus-based Care Recommendations for Children with Myotonic Dystrophy Type 1”

The Knowledge Translation team are are glad to share an infographic of the Myotonic Dystrophy Foundation’s “Consensus-based Care Recommendations for Children with Myotonic Dystrophy Type 1“, with the contribution of Dr. Craig Campbell (NMD4C investigator). The infographic shares a few key clinical points to consider and offers direct link and QR code to download the complete guideline.


Community of Practice for Neuromuscular Allied Healthcare Members: MDC and NMD4C Begin Consultations

The Neuromuscular Disease Network for Canada in partnership with Muscular Dystrophy Canada, is investigating ways to better support allied healthcare professionals that work with clients/patients affected by neuromuscular disorders and their families. We wish to introduce and implement a Community of Practice for allied healthcare professionals this year, but first we would like to complete a needs assessment and seek your valued input.


Meet the Medicine by Design Myogenesis Discussion Group

The Myogenesis Discussion Group holds virtual monthly seminars 2-3pm EST on the last Monday of every month, to promote the communication and dissemination of research within the muscle field for all aspects of muscle (skeletal, smooth and cardiac).