Network’s Approach to Adapting Knowledge Translation Strategies for Neuromuscular Diseases: Knowledge Translation Canada Scientific Meeting

The network is excited to share that on behalf of the NMD4C Knowledge Translation team, Drs. Cynthia Gagnon and Homira Osman have had a poster presentation accepted for inclusion at the Knowledge Translation Canada (KT Canada) 2022 Virtual Scientific Meeting.

The poster presentation “A Network’s Approach to Adapting Knowledge Translation Strategies for Neuromuscular Diseases” focuses on the barriers and facilitators to knowledge translation (KT) for neuromuscular diseases, describing how some of these were amplified during the pandemic, and providing examples of effective KT activities that have improved access and uptake of information which raise standards of care and research, with particular focus on the application of the knowledge-to-action framework to address the needs and challenges of Spinal muscular atrophy (SMA).

Alongside the specific example of the knowledge-to-action framework in SMA, the key messages from the poster include:

Collaboration between clinicians, academics, researchers, patient partners is critical for planning, delivering, and implementing KT activities that intend to influence clinical and policy change.

A pan-Canadian network can fulfil an important role of knowledge broker and can help to address the limited, fragmented, and emerging evidence and clinical expertise.

The use of multi-faceted strategies for knowledge dissemination is important: webinars, social media, newsletters are effective ways to maximize engagement, reach and uptake of knowledge.

The full poster will be available on the KT Canada website after the event, so check back to see the full content!

KT Canada’s Virtual Scientific Meeting 2022

The KT Canada Virtual Scientific Meeting is held entirely online, running from May 4th to May 6th, 2022, with the theme “Developing and evaluating tailored dissemination strategies for different audiences: What have we learned from dissemination science during COVID-19?”. The presentations include 15-minute live oral presentations, and pre-recorded poster presentations. The full agenda is available on the KT Canada Scientific Meeting website; if you are interested in attending this virtual event, you can register online.

The goals of KT Canada are to improve how research results are communicated, develop a consensus on KT terminology and methods for measuring success, evaluate various KT approaches and to find ways to ensure that KT efforts have a lasting impact across the continuum of care by engaging health professionals, community members and various health decision-making groups.

NMD4C Knowledge Translation Strategy

The NMD4C KT strategy focuses on the development, dissemination, and implementation of KT products (including clinical care guidelines) tailored to various audiences with the objectives in pursuit of raising the standard of care for NMD and improving access to NMD therapies across Canada. More information about the NMD4C KT working group is available on the KT page of our website.

 

Knowledge Translation Canada logo

Read next...

2025 Basic Research summer school to be held over May 7-8, 2025 at York University.

2025 NMD4C Basic Research Summer School to be Held at York University

Save the Date! We are thrilled to announce that we will be hosting our second annual basic research summer school for neuromuscular research trainees over May 7-8, 2025 at York University in Toronto, ON.

Call for applications to join the NMD4C trainee committee

Call for Applications: Join the NMD4C’s Basic Science Trainee Committee

We are excited to share an opportunity for Canadian neuromuscular trainees to help shape the NMD4C’s basic science trainee strategy by joining the NMD4C Basic Science Trainee Committee (BSTC)!

NMD4C honored to reveive 2024 Dr David Green Award for Excellene in Service Delivery from MDC

NMD4C Honored with Dr David Green Award for Excellence in Service Delivery at MDC Awards Gala

Dr Jodi Warman-Chardon accepted the 2024 Dr David Green Excellence in Service Delivery Award on behalf of the network at the MDC Awards Gala.

2024 NMD4C Annual Meeting

NMD4C Welcomed Investigators to Annual Meeting in Calgary

Thank you to our investigators who attended the Annual NMD4C Meeting on September 27th in Calgary! Our meeting program consisted of presentations from pillar and task leads which highlighted their groups’ achievements and progress made to date.

LEARNMD logo

NMD4C Launch Educational Platform LEARNMD

LEARNMD is an online educational platform offering talks and sessions on a wide range of neuromuscular topics presented by leading clinical and scientific experts worldwide.

CNDR logo4x3

October 2024 Updates from the Canadian Neuromuscular Disease Registry

The Canadian Neuromuscular Disease Registry (CNDR) is pleased to share updates on several exciting initiatives this fall!