Third module of patient partner and researcher training in development

Opportunity for patients and research teams to provide feedback on third imPORTND module ‘Skills for Patient-Oriented Research’


In February 2023, we launched our ‘imPORTND’ platform to offer two online training modules on how to conduct research that is informed by, and most meaningful to, individuals living with neuromuscular disorders. Since the launch we have seen over 100 users access the platform, and we are excited to share that a third training module is currently in development. ‘Skills for Patient-Oriented Research’ includes content on how to develop an effective patient engagement plan, how to share and listen to patient stories, how to work effectively in groups and how to evaluate the project engagement. 

Help test the third module

We are currently seeking patients and research team members to test this module and provide feedback on user experience and content relevance. If you or your research team would like to help test the third module, please contact network manager Erin Beattie at <>. 


The imPORTND training modules are available for free in both English and French.

Third imPORTND training module in development. 'Skills for patient-oriented research' will provide applied tools for patients and researchers to conduct patient-oriented research.

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