The Neuromuscular Disease Network for Canada (NMD4C)
The Neuromuscular Disease Network for Canada (NMD4C) is the new pan-Canadian network that brings together the country’s leading clinical, scientific, technical, and patient expertise to improve care, research, and collaboration in neuromuscular disease.
Patient Registries Working Group Patient registries collect information about individuals who are affected by a particular condition and are a particularly important research and networking tool for rare diseases. The data collected may be used for a range of purposes, from research into specific features of the disease to clinical trial feasibility planning and recruitment.…Read More
CPD-Accredited Webinar | Neuromuscular Mystery Case Rounds: An unusual presentation of an uncommon disease
I was amazed by the idea that populations of tissue-resident cells maintain and repair the body throughout life, and how drastic the consequences of impaired stem cell-mediated regeneration can be to an individual. It made me consider that understanding stem cell biology could help towards the development of new therapies for incurable conditions, such as many neuromuscular disorders…Read More