The Neuromuscular Disease Network for Canada (NMD4C)
The Neuromuscular Disease Network for Canada (NMD4C) is the pan-Canadian network that brings together the country’s leading clinical, scientific, technical, and patient expertise to improve care, research, and collaboration in neuromuscular disease.
Patient Registries Working Group Patient registries collect information about individuals who are affected by a particular condition and are a particularly important research and networking tool for rare diseases. The data collected may be used for a range of purposes, from research into specific features of the disease to clinical trial feasibility planning and recruitment.…Read More
Dr. Smith is currently leading multiple translational research projects in a wide variety of neuromuscular conditions at The Ottawa Hospital’s NeuroMuscular Centre to facilitate rare disease diagnosis, develop more effective monitoring of neuromuscular disease progression and treatment response.Read More
“Occupational therapy is where science, creativity, and compassion collide”. This is a quote from Jessica Kensky, a survivor of the 2013 Boston Marathon bombing and keynote speaker at the 2016 American Occupational Therapy Association welcome ceremony. To me, this quote represents exactly what I love about my profession. Pursuing a PhD allows me to develop these three elements even further…Read More