Clinical Trial Network

Through the neuromuscular clinical trial network we are working to increase the number of trials conducted in Canada, enhance trial capacity, and support a cohesive network of clinician researchers and their teams.

Mission

To empower clinicians and their teams to lead neuromuscular clinical trials in Canada. Through preparation, strategic promotion, and provision of tools and resources, we aim to bring more clinical trials, enhance trial capacity, and increase the opportunity for patient participation. By fostering an environment of collaboration, we aim to support a cohesive network of clinician researchers. We strive to advance neuromuscular research and partner with all those in the Canadian neuromuscular disease community to improve the implementation and access to clinical trials.

Objectives

1. Increase the number of neuromuscular clinical trials conducted in Canada

1.1 Facilitate connections between industry and clinical sites to support the activation of new clinical trials or the opening of new clinical trial sites.

1.2 Deliver information about upcoming neuromuscular trial opportunities and offer succinct information on existing trials available.

1.3 Implement strategic promotion to increase international visibility by raising awareness on the benefit of conducting neuromuscular clinical trials in Canada.

2. Enhance trial capacity

2.1 Offer education and training programs to clinicians and their teams to improve clinical trial execution.

2.2 Connect with existing patient organizations to increase opportunities for patients to participate in neuromuscular clinical trials.

2.3 Gather patient feedback from patient organizations and clinical sites, then disseminate it to clinical sites and industry stakeholders to advance the development of patient-centric clinical trials.

3. Support a cohesive network of clinician researchers and their teams

3.1 Facilitate peer-to-peer mentorship opportunities among trialists specializing in neuromuscular clinical trials.

3.2 Coordinating a pan-Canadian hub for trialists and their teams to discuss clinical trial experiences, aiming to facilitate the more effective management of specific clinical trials or clinical trial processes.

3.3 Launch a Canada-wide community of practice program for clinical trial coordinators overseeing neuromuscular clinical trials.

Canadian Neuromuscular Clinical Trial Database

The Canadian Neuromuscular Clinical Trial Database has been created as an initiative of the NMD4C Clinical Trial Network in collaboration with Canadian neuromuscular clinical trial site teams to provide a comprehensive and reliable landscape of Canadian neuromuscular clinical trials. Monthly updates are provided by clinical research coordinators working at Canadian trial sites, ensuring the most current information is always available.

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Task Leads

Craig Campbell

Jean Mah

Kerri Schellenberg