Voice in Research: Participating in Data Registries
This webinar is primarily targeted at Canadian patients and families affected by neuromuscular disease.
- Speakers:
Dr. Craig Campbell
Dr. Victoria Hodgkinson
Learning Objectives:
- Understand how registries work!
- Understand why registries are an important part of your healthcare community.
- Learn how to partner with the Canadian Neuromuscular Disease Registry (CNDR) and make a difference in advancing neuromuscular research.
- Understand how to get involved in upcoming research!