New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases
Led by NMD4C steering committee member Dr. Jodi Warman Chardon, this project has been awarded $449,030 over a 3-year period. The project’s goal is to assess the social and economic burden of Canadians living with neuromuscular disorders by using web-based surveys to assess quality-of-life, healthcare resource use, work productivity, and effect on schooling and careers.
Please share this study opportunity with those affected by NMDs and their families within your network!
More information about this project is available at here.
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Save the Date: 2027 Neuromuscular Postdoctoral Fellowship Funding Competition
The 2027 NMD4C/MDC Neuromuscular Postdoc Fellowship Funding Competition will open for applications on September 2, 2026. Our annual funding competition awards salary support for early-career scientists pursuing postdoctoral studies in neuromuscular disease research.
Spinal Muscular Atrophy (SMA) Awareness Month – Research Spotlight
August is Spinal Muscular Atrophy (SMA) Awareness Month, and we are thrilled to feature high-impact research led by members of the NMD4C community!
Published recently in Annals of Neurology, a study titled “Maternal-Fetal Administration of Risdiplam Partially Rescues the SMNΔ7 Mouse Model of Spinal Muscular Atrophy” explores the potential of early prenatal therapeutic interventions for SMA.
