New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases

Led by NMD4C steering committee member Dr. Jodi Warman Chardon, this project has been awarded $449,030 over a 3-year period. The project’s goal is to assess the social and economic burden of Canadians living with neuromuscular disorders by using web-based surveys to assess quality-of-life, healthcare resource use, work productivity, and effect on schooling and careers.

Please share this study opportunity with those affected by NMDs and their families within your network!

More information about this project is available at here.

BIND study poster; graphic of computer and scale in centre, NMD4C logo with MDC and CNDR, OHRI in top right and link to study below.

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NMD4C Talent Pool

Discover Neuromuscular Talent Across Canada

The NMD4C Neuromuscular Talent Pool is now live with new trainees! We invite supervisors and research groups to explore the Talent Pool to identify candidates whose skills, experience, and interests align with your work and upcoming positions. Trainees interested in being included in the Neuromuscular Talent Pool can register by completing the short form, uploading a CV and brief personal statement outlining their experience, interests, and career goals. For more information and to access the Talent Pool, please visit our website.

2026 NMD4C Annual Meeting Registration is Open

Join Us at the 2026 NMD4C Annual Meeting on 25 September

The 2026 NMD4C Annual Meeting will take place in Calgary on Friday, September 25, 2026. The agenda will feature a brief network update, trainee and early-career recognitions, flash talks, a health economics research showcase, and a series of cross‑disciplinary and parallel clinical/pre‑clinical discussion sessions to explore key topics, including advocacy and therapy access, strategies to sustain and strengthen pre-clinical programs, and network sustainability and strategic planning.

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Introducing Our New SOP on Skeletal Muscle Fiber Typing

We are excited to announce the release of our latest Standard Operating Procedure (SOP) titled “Skeletal Muscle Fiber Typing & Cross-Sectional Area Analysis using Immunofluorescence Staining for Mice,” developed by from our Basic Science Trainee Committee (BSTC) member Shatha Atieh, Phd Student at uOttawa. This SOP aims to provide a comprehensive, step-by-step protocol for staining and analyzing skeletal muscle fibers from any muscle group in various mouse models. This new SOP provides detailed methods for immunofluorescence‑based fiber typing using MyHC‑I, MyHC‑IIA, MyHC‑IIB, and laminin, enabling accurate assessment of fiber‑type composition and cross‑sectional area (CSA).