New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases

New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases

Led by NMD4C steering committee member Dr. Jodi Warman Chardon, this project has been awarded $449,030 over a 3-year period. The project’s goal is to assess the social and economic burden of Canadians living with neuromuscular disorders by using web-based surveys to assess quality-of-life, healthcare resource use, work productivity, and effect on schooling and careers.

Please share this study opportunity with those affected by NMDs and their families within your network!

More information about this project is available at here.

New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases

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Scheduled Maintenance

Please note that this website, imPORTND, and the NNLS training platform will undergo maintenance from July 23 until July 27, 2026.

Discover Neuromuscular Talent Across Canada

The NMD4C Neuromuscular Talent Pool is now live with new trainees! We invite supervisors and research groups to explore the Talent Pool to identify candidates whose skills, experience, and interests align with your work and upcoming positions.

Join Us at the 2026 NMD4C Annual Meeting on 25 September

The 2026 NMD4C Annual Meeting will take place in Calgary on Friday, September 25, 2026. All basic science trainees who attend the NMD4C Annual Meeting will receive complimentary registration for the basic science sessions and the networking event at WCNMC 2026.