New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases

Led by NMD4C steering committee member Dr. Jodi Warman Chardon, this project has been awarded $449,030 over a 3-year period. The project’s goal is to assess the social and economic burden of Canadians living with neuromuscular disorders by using web-based surveys to assess quality-of-life, healthcare resource use, work productivity, and effect on schooling and careers.

Please share this study opportunity with those affected by NMDs and their families within your network! More information about this project is available at https://omc.ohri.ca/BIND/.

BIND study poster; graphic of computer and scale in centre, NMD4C logo with MDC and CNDR, OHRI in top right and link to study below.

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2024 year in review

NMD4C 2024 Year in Review

This year in review outlines a collection of achievements from the network over the past year.

2025 NM fellowship funding recipients

NMD4C and MDC Award Fellowship Funding in NMD Research and Medicine

Together the Neuromuscular Disease Network for Canada (NMD4C) and Muscular Dystrophy Canada (MDC) are excited to announce the 2025 recipients of our neuromuscular fellowship funding competition to award postdoctoral fellowships in neuromuscular disease (NMD) research and clinical fellowships in neuromuscular medicine and electromyography!

Meet the Basic Science Trainee Committee

NMD4C Basic Science Trainee Committee Provides Leadership Opportunity for Next Generation of Neuromuscular Researchers

The newly-formed Basic Science Trainee Committee represents the interests of trainees within the network, offering an opportunity for professional growth for future leaders in neuromuscular research.

SMA Workshop Pic 2

NMD4C and MDC Host Second SMA Outcome Measure Training Workshop for Physiotherapists and Occupational Therapists Across Canada

The Spinal Muscular Atrophy (SMA) Motor Function Measures workshop organized by the NMD4C in collaboration with MDC took place in Montreal, Quebec on December 3rd, 2024 and was a resounding success. This workshop was established to harmonize assessment practices for the following SMA outcome measures across Canada

2025 MultiD Care Program (1200 x 900 px)

NMD4C Launch New Multi-Disciplinary Care of Neuromuscular Diseases Education Curriculum

The NMD4C is excited to share a new training and education initiative from our education team! The Multi-Disciplinary Care of Neuromuscular Diseases lecture series is a new CPD-Accredited 24-topic webinar series designed as an advanced curriculum for the practicing clinical audience to learn fundamentals of multi-disciplinary care for patients across a range of neuromuscular conditions.

2025 Basic Research Summer School application image

2025 NMD4C Basic Research Summer School to be Held at York University

Save the Date! We are thrilled to announce that we will be hosting our second annual basic research summer school for neuromuscular research trainees over May 7-8, 2025 at York University in Toronto, ON.