New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases

Led by NMD4C steering committee member Dr. Jodi Warman Chardon, this project has been awarded $449,030 over a 3-year period. The project’s goal is to assess the social and economic burden of Canadians living with neuromuscular disorders by using web-based surveys to assess quality-of-life, healthcare resource use, work productivity, and effect on schooling and careers.

Please share this study opportunity with those affected by NMDs and their families within your network!

More information about this project is available at here.

BIND study poster; graphic of computer and scale in centre, NMD4C logo with MDC and CNDR, OHRI in top right and link to study below.

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NEWS_Scheduled Website Maintenance

Scheduled Maintenance

Our websites and training platforms will be undergoing maintenance from December 22 – 26 and 29 – 31, 2025. During this period, access may be limited until the work is complete. We appreciate your patience while this maintenance is carried out. If you require assistance during these times, please contact our Communications Coordinator, Lola Owoeye.

2026 Basic Research Summer School

Applications are now open for the 2026 NMD4C Basic Research Summer School!!!

Application Deadline: January 27, 2026 | We are excited to announce that applications are now open for our third Basic Research Summer School for neuromuscular research trainees! Led by  Dr. Mireille Khacho, the 2026 NMD4C Basic Research Summer School will be held from June 8th to 10th at the University of Ottawa.

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Call for Applications: Join the NMD4C Basic Science Trainee Committee (BSTC)

We are now accepting applications from graduate students, research trainees, and postdoctoral fellows working in neuromuscular labs in Canada.