New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases
Led by NMD4C steering committee member Dr. Jodi Warman Chardon, this project has been awarded $449,030 over a 3-year period. The project’s goal is to assess the social and economic burden of Canadians living with neuromuscular disorders by using web-based surveys to assess quality-of-life, healthcare resource use, work productivity, and effect on schooling and careers.
Please share this study opportunity with those affected by NMDs and their families within your network! More information about this project is available at https://omc.ohri.ca/BIND/.
Read next...
NMD4C Welcomed Investigators to Annual Meeting in Calgary
Thank you to our investigators who attended the Annual NMD4C Meeting on September 27th in Calgary! Our meeting program consisted of presentations from pillar and task leads which highlighted their groups’ achievements and progress made to date.
NMD4C Launch Educational Platform LEARNMD
LEARNMD is an online educational platform offering talks and sessions on a wide range of neuromuscular topics presented by leading clinical and scientific experts worldwide.
October 2024 Updates from the Canadian Neuromuscular Disease Registry
The Canadian Neuromuscular Disease Registry (CNDR) is pleased to share updates on several exciting initiatives this fall!
2025 Annual NMD4C Early-Career Awards Open for Applications
We are excited to announce the opening of our third annual early-career awards competition!
NMD4C Provides Opportunity for Neuromuscular Fellows to Build Clinical Network at National Meeting
We are pleased to share that this fall we provided an opportunity for clinical neuromuscular fellows to attend NMD4C’s annual meeting and the Western Canadian Neuromuscular Conference (WCNMC) in Calgary.
