New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases

Led by NMD4C steering committee member Dr. Jodi Warman Chardon, this project has been awarded $449,030 over a 3-year period. The project’s goal is to assess the social and economic burden of Canadians living with neuromuscular disorders by using web-based surveys to assess quality-of-life, healthcare resource use, work productivity, and effect on schooling and careers.

Please share this study opportunity with those affected by NMDs and their families within your network! More information about this project is available at https://omc.ohri.ca/BIND/.

BIND study poster; graphic of computer and scale in centre, NMD4C logo with MDC and CNDR, OHRI in top right and link to study below.

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ImPORTND logo with text reading 'new module - skills for patient oriented research'

New Course ‘Skills for Patient Oriented Research’ Added to ImPORTND Training Platform

The third and final module of our patient-oriented research training platform, ImPORTND, is now available! ‘Skills for Patient-Oriented Research’ teaches specific skills to help with patient-oriented research (POR), including how to develop an effective patient engagement plan, share and listen to patient stories, and evaluate project engagement. 

MDC, NMD4C and CSCN fellowships competition is now open

Annual Neuromuscular Postdoctoral Research and Clinical Fellowships Funding Competition Now Open

Our 2024 annual funding competition to award postdoctoral fellowships in neuromuscular disease research, and clinical fellowship awards in neuromuscular medicine and electromyography is now open!

canada-people

Curriculum Group Wraps up Inaugural Fellows’ Training Series

Our national neuromuscular lecture series launched last August 2022 has just wrapped up! The series consisted of a weekly (38 weeks) virtual Royal College CPD-accredited curriculum for neuromuscular fellows presented by subject-matter experts, developed by the curriculum working group together with the directors of fellowship programs across Canada.  

NMD4C and MDC together offer free training and support for research teams and patients to conduct patient oriented research

ImPORTND – Training for Research Teams and Patient and Family Partners to Conduct Patient-Oriented Research in Neuromuscular Diseases

We are partnering with Muscular Dystrophy Canada (MDC) to offer free training and support services for research teams and patients to empower all members of the research team to conduct research that is informed by, and most meaningful to individuals living with neuromuscular disorders. 

NMD4C awarded grant funding from CIHR-IMHA and funding from MDC for a period of 5 years.

Press Release | Neuromuscular Disease Network for Canada Awarded 5-Year Grant from CIHR-IMHA and Funding from MDC to Strengthen Canadian Neuromuscular Research and Care

The NMD4C has received a network grant from CIHR-IMHA and matched funding from MDC, providing funding of $400 000 per year for five years to strengthen the care, research and treatment of neuromuscular diseases for all Canadians.

Ottawa NMD conference poster

Important Deadlines for Ottawa NMD 2023

The Ottawa International Conference on Neuromuscular Disease and Biology (Ottawa NMD 2023) deadline for discounted early-bird registration and abstract submission is June 30th!