New CIHR-funded Burden of Inherited Neuromuscular Disease (BIND) Study: Assessing the Indirect Socio-Economic Burden of Inherited Neuromuscular Diseases

Led by NMD4C steering committee member Dr. Jodi Warman Chardon, this project has been awarded $449,030 over a 3-year period. The project’s goal is to assess the social and economic burden of Canadians living with neuromuscular disorders by using web-based surveys to assess quality-of-life, healthcare resource use, work productivity, and effect on schooling and careers.

Please share this study opportunity with those affected by NMDs and their families within your network! More information about this project is available at https://omc.ohri.ca/BIND/.

BIND study poster; graphic of computer and scale in centre, NMD4C logo with MDC and CNDR, OHRI in top right and link to study below.

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Defeat Duchenne Canada logo.

Defeat Duchenne Canada launches 2023 Research Grant Program

DDC invites research proposals for their 2023 research grant program of a translational or clinical nature focused on improving the health and quality of life for individuals living with Duchenne muscular dystrophy.

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Investigator Dr. Maryam Oskoui Receives CIHR Grant to Fund Spinal Muscular Atrophy Clinical Trial

NMD4C investigator Dr. Maryam Oskoui was awarded a Canadian Institutes of Health Research Clinical Trials Operating Grant for INFORM SMA as nominated principal applicant.

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Early Career member Dr. Jean-Philippe Leduc-Gaudet identifies gene involved in regulating autophagy and skeletal muscle integrity

NMD4C early career member, Dr. Jean-Philippe Leduc-Gaudet, has made a significant discovery by identifying a novel gene that plays a key role in regulating autophagy and skeletal muscle health

text reading Canadian FSHD registry, with icons in centre of page and CNDR and MDC logos underneath.

Muscular Dystrophy Canada, Canadian Neuromuscular Disease Registry, NMD4C partner to ensure Canadians can access Facioscapulohumeral muscular dystrophy (FSHD) cure(s)

MDC and the CNDR are working together with NMD4C to introduce a patient registry and collect information to build a Canada-wide core dataset for FSHD.

Congratulations to the early career award recipients! Photos of the three recipients, with text reading biomedical researcher of the year, clinical researcher of the year, publication of the year.

NMD4C Announces 2023 Early Career Award Recipients

We are excited to announce the recipients of the inaugural NMD4C Early Career Investigator Awards for 2023! This annual award program introduces three new awards, celebrating excellence and contribution to the neuromuscular field by early career investigators across both clinical and basic science streams.

NMD4C 2022 year in review poster

2022 NMD4C Year in Review

The NMD4C would like to reflect on all the inspiring progress the network has made towards the network’s goals in 2022. This year in review outlines a collection of achievements from the network over the past year.