The Neuromuscular Disease Network for Canada

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Introducing NMD4C Clinical Trial Concierge Bonnie Wooten

The NMD4C Clinical Trial working group’s activities strengthen and support the coordination and communication of neuromuscular clinical trials in Canada to optimize access for all stakeholders to timely and accurate information.

To facilitate the network’s Clinical Trial Coordination activities and to meet this demand, the NMD4C is excited to announce the hiring of Bonnie Wooten, who has joined the team in her role as the Clinical Trial Concierge. In her role, Bonnie will work with all stakeholders including clinicians, families, and industry.

Read Bonnie’s full bio here.

Bonnie has already begun to collect information on the current landscape of neuromuscular clinical trials in Canada; stay tuned for more information to come in the coming months.

Bonnie Wooten profile pic

Read next...

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Knowledge Translation Team Share Clinical Practice Guideline Infographic

The Knowledge Translation team are are glad to share an infographic of the clinical practice guideline “Promoting Sexuality and Intimate Relationships in Adults with a NMD in Occupational Therapy”

Upcoming neuromuscular conferences

Upcoming Neuromuscular Conferences in 2022

This year we are excited to anticipate the return of in-person conferences, which provide an invaluable training and networking experience to all members of the neuromuscular community and which have been dearly missed over the past two years. In 2022, Canada will host several major neuromuscular conferences, both domestic and international. Please take a moment…

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Network’s Approach to Adapting Knowledge Translation Strategies for Neuromuscular Diseases: Knowledge Translation Canada Scientific Meeting

on behalf of the NMD4C Knowledge Translation team, Drs. Cynthia Gagnon and Homira Osman have had a poster presentation accepted for inclusion at the Knowledge Translation Canada (KT Canada) 2022 Virtual Scientific Meeting.

Dr. Emanuela Pannia EC Blog

Read NMD4C and MDC Postdoc Fellowship Recipient Dr. Emanuela Pannia’s Early-Career Blog

Read the latest early career blog post, from NMD4C and MDC Postdoc Fellowship Recipient Dr. Emanuela Pannia.

Clinical practice guideline in NMD infographic logo

Knowledge Translation Team Infographic “Consensus-based Care Recommendations for Children with Myotonic Dystrophy Type 1”

The Knowledge Translation team are are glad to share an infographic of the Myotonic Dystrophy Foundation’s “Consensus-based Care Recommendations for Children with Myotonic Dystrophy Type 1“, with the contribution of Dr. Craig Campbell (NMD4C investigator). The infographic shares a few key clinical points to consider and offers direct link and QR code to download the complete guideline.

CoP-MDC

Community of Practice for Neuromuscular Allied Healthcare Members: MDC and NMD4C Begin Consultations

The Neuromuscular Disease Network for Canada in partnership with Muscular Dystrophy Canada, is investigating ways to better support allied healthcare professionals that work with clients/patients affected by neuromuscular disorders and their families. We wish to introduce and implement a Community of Practice for allied healthcare professionals this year, but first we would like to complete a needs assessment and seek your valued input.