NMD4C Monthly Newsletter
Previous Issues of the NMD4C Newsletter
March 2022 Newsletter
The March 2022 issue of the NMD4C newsletter is now available! Read about the new Congenital myasthenic syndrome registry from the CNDR, a roundup of the neuromuscular campaigns from Rare Disease Day 2022, and an exciting update from MDC on newborn screening! Plus job opportunities, events, new research, member spotlights and more!
February 2022 Newsletter
The February 2022 issue of the NMD4C newsletter is now available! Read about the new patient oriented research resources tool from the EPCB group, A uniquely Canadian clinical trial funded in part by Jesse’s Journey, an exciting collaboration between MDC and IL Canada to help inform the development of Canada’s first disability inclusion action plan! Plus job opportunities, events, new research, member spotlights and more!
January 2022 Newsletter
Read about our plans for 2022, the recipients of the NMD4C and MDC postdoctoral fellowship funding, and read the two recent early-career member blogs. Plus job opportunities, events, new research, member spotlights and more!
December 2021 Newsletter
The December 2021 issue of the NMD4C newsletter is now available! Read our 2021 Year in Review, learn about new ways the NMD4C can help you share your neuromuscular events, Dr. Hanns Lochmüller receives MDC’s Dr. George Karpati award, and we wrap up the final session of the Defeat Duchenne Canadian Conference! Plus new research, a postdoc opportunity with GRIMN, webinar recordings, members spotlights and more!
November 2021 Newsletter
We announce a networking event that is open to all NMD4C members, provide a KT update on their webinar series which began in September, and share the lineup for our third and final installment of the Defeat Duchenne Canadian Conference! Plus upcoming events and webinars, opportunities, meet the team spotlights, and more!
October 2021 Newsletter
We announce a new fellowship funding opportunity for early-career clinicians, share the appointments of early-career members of the network to the leadership of three working groups, and provide a summary of the various neuromuscular awareness days and months’ activities from September. Plus upcoming events and webinars, opportunities meet the team spotlights, and more!
September 2021 Newsletter
The September 2021 issue of the NMD4C newsletter is now available! We announce a new fellowship funding opportunity for postdoctoral neuromuscular researchers, share a positive funding decisions for a project led by a NMD4C steering committee member, and share details on our role in International myotonic dystrophy Awareness Day. Plus upcoming events and webinars, opportunities…
August 2021 Newsletter
We share a sneak peek of an exciting project we are working on with MDC, positive funding decisions for projects led by NMD4C members, and highlight some of the events and activities from around the community for SMA awareness month, happening in August! Plus upcoming events and webinars, meet the team spotlights, and more!
July 2021 Newsletter
We share a new publication Guidance on gene replacement therapy in Spinal Muscular Atrophy: a Canadian perspective, and launch the new clinical trial concierge web page. We also share news about a new EPIC functionality helping to keep myotonic dystrophy patients safe at The Ottawa Hospital, the ENMC’s new Themed workshops, Knowledge Translation updates, a 2021 Walk4MD wrap-up & more!
June 2021 Newsletter
We give updates from our Early Career working group, grant funding announcements from our partners, and a newborn screening announcement from MDC! Also check out our next webinar, a member spotlight on investigator Dr. Lawrence Korngut and events from around the community.
May 2021 Newsletter
We give updates from our Biobanking working group including a list of Canadian neuromuscular biobanks, an introduction to the new clinical trial coordinator Bonnie Wooten, details about a Canadian Congenital Myotonic Dystrophy trial, a statement in response to high cost drugs for RD, and announce an event in partnership with Jesse’s Journey & MDC!
April 2021 Newsletter
We give updates from our Expert Patient Capacity Building working group and the Clinical Research Curriculum Development working group including a list of Canadian Neuromuscular Fellowships, a statement in response to high cost drugs for RD, and announce an event in partnership with Jesse’s Journey & MDC!
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