The Neuromuscular Disease Network for Canada (NMD4C)

The Neuromuscular Disease Network for Canada (NMD4C) is the new pan-Canadian network that brings together the country’s leading clinical, scientific, technical, and patient expertise to improve care, research, and collaboration in neuromuscular disease.

Knowledge Translation

The network’s KT group works to raise the standard of care and improve access to NMD therapies through the development, dissemination, and implementation of KT products (including clinical care guidelines).

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Patient Registries

Patient Registries Working Group Patient registries collect information about individuals who are affected by a particular condition and are a particularly important research and networking tool for rare diseases. The data collected may be used for a range of purposes, from research into specific features of the disease to clinical trial feasibility planning and recruitment.…

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Expert Patient Capacity Building

The EPCB group in collaboration with MDC and a group of patient-partners are working to establish expert patient capacity building in the Canadian neuromuscular community

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Clinical Trial Coordination

The NMD4C works to unite stakeholders in the Canadian neuromuscular clinical trial landscape including clinicians and trial sites, partner organizations, industry and people affected by NMDs.

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Early-Career

The NMD4C provide opportunities for EC members to encourage engagement in shaping the future of research and treatment surrounding NMDs.

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Clinical Curriculum Development

The clinical curriculum development group works towards standardising a curriculum for the training of clinical fellows in neuromuscular medicine in Canada.

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Biobanking

The NMD4C biobanking group seeks to unite the Canadian neuromuscular biobanking community, and provides information on current biobanks.

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Dr. Gordon Jewett’s Early Career Blog

Dr. Gordon Jewett’s Blog Athletes learn early in their sporting career that performance is impacted by countless factors; a restless night’s sleep, a meal at the wrong time, a hard workout too many, equipment poorly prepared. Because of these variables of life, athletes must judge their success by the average of their season, rather than…

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Samar Muslemani’s Blog

“Occupational therapy is where science, creativity, and compassion collide”. This is a quote from Jessica Kensky, a survivor of the 2013 Boston Marathon bombing and keynote speaker at the 2016 American Occupational Therapy Association welcome ceremony. To me, this quote represents exactly what I love about my profession. Pursuing a PhD allows me to develop these three elements even further…

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Dr. Hebah Qashqari’s Blog

During my pediatric neurology residency training, I was able to dive into different subspecialties of neurology in great detail. I was drawn to the neuromuscular specialty by the significant ongoing advances in understanding the genetics of the neuromuscular disorders and the growing number of novel therapeutic options in the field…

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