New Best Practice Recommendations for SBMA Care in Canada
Congratulations to Dr. Kerri Schellenberg and the team of Canadian experts, including our NMD4C Steering Committee members and Investigators, on publishing the first Canadian SBMA care guidelines!
We congratulate Dr. Kerri Schellenberg and the team of Canadian experts, including our NMD4C Steering Committee members and Investigators, on publishing the first Canadian best practice recommendations for the clinical care of spinal bulbar muscular atrophy (SBMA) in the Canadian Medical Association Journal (CMAJ).
These guidelines provide actionable guidance for multidisciplinary care teams to manage motor and non-motor symptoms, support early diagnosis, and ensure timely referrals to specialized care.
The recommendations were developed by leading Canadian clinicians and researchers, including:
- NMD4C Steering Committe Members: Drs. Lawrence Korngut, Gerald Pfeffer, and Jodi Warman Chardon.
- NMD4C Investigators: Drs. Kerri Schellenberg (Lead), Colleen O’Connell, Christen Shoesmith, Alexandra King, and Malcolm King.
- Additional contributing experts: Drs. Gudrun Caspar-Bell, Colin Ellis, Wendy Johnston, Brendan Kushneriuk, Andrea Lavoie, Reid McGonigle, Julia Newton, Oksana Suchowersky, and Shane Wunder.
These guidelines aim to optimize outcomes and support quality of life for individuals living with SBMA. We encourage you to share this important publication with your networks.
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Applications are now open for the 2026 NMD4C Basic Research Summer School!!!
Application Deadline: January 27, 2026 | We are excited to announce that applications are now open for our third Basic Research Summer School for neuromuscular research trainees! Led by Dr. Mireille Khacho, the 2026 NMD4C Basic Research Summer School will be held from June 8th to 10th at the University of Ottawa.
