New Best Practice Recommendations for SBMA Care in Canada
Congratulations to Dr. Kerri Schellenberg and the team of Canadian experts, including our NMD4C Steering Committee members and Investigators, on publishing the first Canadian SBMA care guidelines!
We congratulate Dr. Kerri Schellenberg and the team of Canadian experts, including our NMD4C Steering Committee members and Investigators, on publishing the first Canadian best practice recommendations for the clinical care of spinal bulbar muscular atrophy (SBMA) in the Canadian Medical Association Journal (CMAJ).
These guidelines provide actionable guidance for multidisciplinary care teams to manage motor and non-motor symptoms, support early diagnosis, and ensure timely referrals to specialized care.
The recommendations were developed by leading Canadian clinicians and researchers, including:
- NMD4C Steering Committe Members: Drs. Lawrence Korngut, Gerald Pfeffer, and Jodi Warman Chardon.
- NMD4C Investigators: Drs. Kerri Schellenberg (Lead), Colleen O’Connell, Christen Shoesmith, Alexandra King, and Malcolm King.
- Additional contributing experts: Drs. Gudrun Caspar-Bell, Colin Ellis, Wendy Johnston, Brendan Kushneriuk, Andrea Lavoie, Reid McGonigle, Julia Newton, Oksana Suchowersky, and Shane Wunder.
These guidelines aim to optimize outcomes and support quality of life for individuals living with SBMA. We encourage you to share this important publication with your networks.
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Discover Neuromuscular Talent Across Canada
The NMD4C Neuromuscular Talent Pool is now live with new trainees! We invite supervisors and research groups to explore the Talent Pool to identify candidates whose skills, experience, and interests align with your work and upcoming positions. Trainees interested in being included in the Neuromuscular Talent Pool can register by completing the short form, uploading a CV and brief personal statement outlining their experience, interests, and career goals. For more information and to access the Talent Pool, please visit our website.
Join Us at the 2026 NMD4C Annual Meeting on 25 September
The 2026 NMD4C Annual Meeting will take place in Calgary on Friday, September 25, 2026. The agenda will feature a brief network update, trainee and early-career recognitions, flash talks, a health economics research showcase, and a series of cross‑disciplinary and parallel clinical/pre‑clinical discussion sessions to explore key topics, including advocacy and therapy access, strategies to sustain and strengthen pre-clinical programs, and network sustainability and strategic planning.