The Neuromuscular Disease Network for Canada

The Neuromuscular Disease Network for Canada is thrilled to announce the launch of a Canadian neuromuscular clinical trial network (CTN) as a part of our clinical research work. Led by investigators Dr. Craig Campbell, Dr. Jean Mah, and Dr. Kerri Schellenberg, the CTN will work towards increasing the number of neuromuscular clinical trials conducted in Canada, enhancing Canadian neuromuscular trial capacity, and supporting a cohesive network of clinician researchers and their teams.  

Increasing the number of neuromuscular clinical trials conducted in Canada 

The CTN will facilitate connections between industry and clinical sites to support the activation of new clinical trials or the opening of new clinical trial sites. We will deliver information about upcoming neuromuscular trial opportunities and offer information on existing trials available and implement strategic promotion to increase international visibility of the benefits of conducting neuromuscular clinical trials in Canada. 

Enhancing trial capacity 

The CTN will offer education and training programs to clinicians and their teams to improve clinical trial execution, connect with existing patient organizations to increase opportunities for patients to participate in neuromuscular clinical trials, and gather patient feedback from patient organizations and clinical sites to advance the development of patient-centric clinical trials. 

Supporting a network of clinician researchers and their teams 

The CTN will facilitate peer-to-peer mentorship opportunities among trialists specializing in neuromuscular clinical trials, coordinate a pan-Canadian hub for trialists and their teams to discuss clinical trial experiences, and launch a Canada-wide community of practice program for clinical trial coordinators overseeing neuromuscular clinical trials. 

The CTN leadership group will be supported by Maria Masnata, our new clinical trials and community of practice manager. Learn more about the CTN mission and objectives, or contact Maria Masnata for more information!