Advancing Neuromuscular Research: 2025 NMD4C Publications
Our network continues to grow, collaborate, and push the field forward, and these 2025 publications highlight the impact our community is making together:
Building Capacity for Patient Engagement in Neuromuscular Disease Research:
This open‑access publication introduces imPORTND, the first patient‑oriented research (POR) training program tailored to neuromuscular diseases. Co‑developed by NMD4C investigators – clinicians, and researchers – with patient‑partners, the program addresses gaps in POR training and supports meaningful, accessible engagement across the neuromuscular research community.
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The BIND Study:
Our study explores the financial challenges faced by more than 1,400 Canadians living with neuromuscular disorders and highlights the real‑world impact of the economic strain on patients and caregivers.
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2nd NMD4C Basic Research Summer School Report:
Based on our a look back at our 2024 summer school, where neuromuscular research trainees and researchers came together to promote standardized protocols and strengthen translational research across the Canadian neuromuscular community.