The Neuromuscular Disease Network for Canada (NMD4C)
The Neuromuscular Disease Network for Canada (NMD4C) is the pan-Canadian network that brings together the country’s leading clinical, scientific, technical, and patient expertise to improve care, research, and collaboration in neuromuscular disease.
Patient Registries Working Group Patient registries collect information about individuals who are affected by a particular condition and are a particularly important research and networking tool for rare diseases. The data collected may be used for a range of purposes, from research into specific features of the disease to clinical trial feasibility planning and recruitment.…Read More
Back in 2011, my introduction to Neuromuscular Disorders (NMD) research happened by chance when I joined as a temporary research associate in a Limb-Girdle Muscular Dystrophy (LGMD) project under the supervision of Prof. Atchayaram Nalini, an accomplished neurologist and NMD specialist in South India..Read More