Current state of spinal muscular atrophy in Canada: Practical considerations for clinicians | Webinar report
In partnership with Muscular Dystrophy Canada (MDC), NMD4C delivered its first webinar on April 21, 2020. The topic was the current state of spinal muscular atrophy (SMA) in Canada, with a target audience of neurologists, scientists, physicians, medical trainees/students, and other allied healthcare professionals involved in the care of patients with neuromuscular disease (NMD). The goal was to share knowledge on best practices, current issues, disease diagnosis and management, and possible therapeutic interventions.
Read the webinar report HERE
Topics and speakers:
SMA Clinical Care in the Era of COVID-19
Dr. Jodi Warman Chardon (NMD4C Steering Committee member)
Newborn Screening in Ontario
Dr. Kristin Kernohan, Dr. Alex Mackenzie, Dr. Hugh McMillan (NMD4C Investigator)
Update on Zolgensma for Canada
Dr. Hugh McMillan (NMD4C Investigator)
Update on Risdiplam for Canada
Dr. Craig Campbell (NMD4C Investigator)
Adult Outcome Measures
Dr. Colleen O’Connell
Update on CNDR-SMA Project
Dr. Lawrence Korngut (NMD4C Investigator), Dr. Victoria Hodgkinson (NMD4C Collaborator)
Read next...
Sixth Annual NMD4C and MDC Clinical Fellowship Competition from Opens May 1st
Together, NMD4C and MDC are excited to open our 2027 annual funding competition to provide clinical fellowship award(s) in neuromuscular medicine and electromyography (EMG)! This annual funding competition provides one-year salary support ($80,000) for early-career clinicians to participate in Canadian neuromuscular medicine and EMG fellowship training programs.
Advancing Neuromuscular Research: MDC Awards $700k to Seven NMD4C Investigator-Led Projects
We’re proud to share that neuromuscular research led by our NMD4C Investigators and Leads; Dr. Hanns Lochmüller, Dr. Rashmi Kothary, Dr. Rami Massie, Dr. Elise Duchesne, Dr. Omid Kiamanesh, and Dr. Nicolas Dumont, have been recognized in Muscular Dystrophy Canada’s 2026 Neuromuscular Clinical and Translational Research Grant announcement. Drawing from MDC’s national funding update, we’re…
Announcing the 2026 NMD4C Award Recipients
We are excited to announce the recipients of the 2026 NMD4C Awards, recognizing excellence, leadership, and impact across Canada’s neuromuscular research community. In this fourth cycle, the program introduces two new award categories, and expand on our ability to celebrate the work of contributions of trainees and patient partners who strengthen our national network.