Current state of spinal muscular atrophy in Canada: Practical considerations for clinicians | Webinar report
In partnership with Muscular Dystrophy Canada (MDC), NMD4C delivered its first webinar on April 21, 2020. The topic was the current state of spinal muscular atrophy (SMA) in Canada, with a target audience of neurologists, scientists, physicians, medical trainees/students, and other allied healthcare professionals involved in the care of patients with neuromuscular disease (NMD). The goal was to share knowledge on best practices, current issues, disease diagnosis and management, and possible therapeutic interventions.
Read the webinar report HERE
Topics and speakers:
SMA Clinical Care in the Era of COVID-19
Dr. Jodi Warman Chardon (NMD4C Steering Committee member)
Newborn Screening in Ontario
Dr. Kristin Kernohan, Dr. Alex Mackenzie, Dr. Hugh McMillan (NMD4C Investigator)
Update on Zolgensma for Canada
Dr. Hugh McMillan (NMD4C Investigator)
Update on Risdiplam for Canada
Dr. Craig Campbell (NMD4C Investigator)
Adult Outcome Measures
Dr. Colleen O’Connell
Update on CNDR-SMA Project
Dr. Lawrence Korngut (NMD4C Investigator), Dr. Victoria Hodgkinson (NMD4C Collaborator)
Read next...
Save the Date: 2027 NMD4C-RARE.Qc Basic Science Research Summer School
NMD4C and RARE.Qc are pleased to announce the 2027 NMD4C–RARE.Qc Basic Science Research Summer School, will take place May 12-14, 2027, at the Université du Québec à Trois-Rivières (UQTR). The Summer School will bring together graduate students, postdoctoral fellows, and early-career researchers for hands-on training workshops, scientific lectures, trainee presentations, networking opportunities, and engagement with leading experts in neuromuscular and rare disease research.
Congratulations to our 2026 Collaborative Research Training Award Recipients!!!
We are excited to announce the recipients of the 2026 NMD4C Collaborative Research Training Awards, which supports Canadian trainees in their efforts to advance neuromuscular disease research while strengthening national collaboration among neuromuscular research laboratories.
Announcing the 2027 Neuromuscular Clinical Fellowship Funding Recipients!
Together with Muscular Dystrophy Canada, we’re excited to share our 2027 Neuromuscular Clininacal Fellowship Funding Recipients; Dr. Larissa Maini (University of Calgary), Dr. Anna Branch (University of Ottawa) and Dr. Olumide Emmanuel Adegunna (University of Toronto)! This year’s competition provided one-year salary support ($80,000) for our early-career clinicians to participate in Canadian neuromuscular medicine and electromyography (EMG) fellowship training programs.