Current state of spinal muscular atrophy in Canada: Practical considerations for clinicians | Webinar report

In partnership with Muscular Dystrophy Canada (MDC), NMD4C delivered its first webinar on April 21, 2020. The topic was the current state of spinal muscular atrophy (SMA) in Canada, with a target audience of neurologists, scientists, physicians, medical trainees/students, and other allied healthcare professionals involved in the care of patients with neuromuscular disease (NMD). The goal was to share knowledge on best practices, current issues, disease diagnosis and management, and possible therapeutic interventions.


Read the webinar report HERE


Topics and speakers:

SMA Clinical Care in the Era of COVID-19

Dr. Jodi Warman Chardon (NMD4C Steering Committee member)

Newborn Screening in Ontario

Dr. Kristin Kernohan, Dr. Alex Mackenzie, Dr. Hugh McMillan (NMD4C Investigator)

Update on Zolgensma for Canada

Dr. Hugh McMillan (NMD4C Investigator)

Update on Risdiplam for Canada

Dr. Craig Campbell (NMD4C Investigator)

Adult Outcome Measures

Dr. Colleen O’Connell

Update on CNDR-SMA Project

Dr. Lawrence Korngut (NMD4C Investigator), Dr. Victoria Hodgkinson (NMD4C Collaborator)

Annotation 2020-05-20 103803

Read next...

Muscular Dystrophy Canada is thrilled to launch an innovative initiative designed to tackle the diagnostic hurdles experienced by individuals with myotonic dystrophy.

Muscular Dystrophy Canada Launches Initiative to Improve Genetic Testing Access for Myotonic Dystrophy

Muscular Dystrophy Canada is thrilled to launch an innovative initiative designed to tackle the diagnostic hurdles experienced by individuals with myotonic dystrophy.

LEARNMD content update - February 2025

New Content Available in LEARNMD

LEARNMD is the NMD4C’s online educational platform, offering talks and sessions on a wide range of neuromuscular topics presented by leading clinical and scientific experts worldwide. We’re excited to share what’s new on LEARNMD in February 2025!

RQAS logo

Quebec Network RĂ©seau QuĂ©bĂ©coise de l’Amyotrophie Spinale Joins NMD4C as Community of Practice Sub-Group

We are thrilled to announce that the RQAS, a network uniting rehabilitation clinicians across Quebec to advance the care of people with Spinal Muscular Atrophy has officially become a sub-group Community of Practice of the NMD4C

2024 year in review

NMD4C 2024 Year in Review

This year in review outlines a collection of achievements from the network over the past year.

2025 NM fellowship funding recipients

NMD4C and MDC Award Fellowship Funding in NMD Research and Medicine

Together the Neuromuscular Disease Network for Canada (NMD4C) and Muscular Dystrophy Canada (MDC) are excited to announce the 2025 recipients of our neuromuscular fellowship funding competition to award postdoctoral fellowships in neuromuscular disease (NMD) research and clinical fellowships in neuromuscular medicine and electromyography!

Meet the Basic Science Trainee Committee

NMD4C Basic Science Trainee Committee Provides Leadership Opportunity for Next Generation of Neuromuscular Researchers

The newly-formed Basic Science Trainee Committee represents the interests of trainees within the network, offering an opportunity for professional growth for future leaders in neuromuscular research.