The Neuromuscular Disease Network for Canada

funder-logos_nmd4c

NMD4C Year in Review

NMD4C 2020 Year in Review

The NMD4C is proud to be where we are today. It is no easy task to unite a diverse community of stakeholders under a clear and united vision; even more difficult is to do so with the unique challenges every single member of our community faced during 2020.

With the sudden onset of obstacles early in the year, we are grateful for the outstanding work and involvement from everyone who was a part of the network in 2020. Thanks to the resilience and drive of our Steering Committee, Investigators, Collaborators, and members, we are in the position to celebrate a year of success and meaningful gains towards our network goals.

We look forwards to growing as a network with all of you in the coming year, and in the meantime invite you to reflect on some of the highlights from the past year.

Wishing everyone a happy holiday, and we will see you in 2021!

 

Noteworthy News

Revisit the top 5 most-read news stories published by the NMD4C over the past year!

  1. COVID-19 and Neuromuscular Patients
  2. Current State of Spinal Muscular Atrophy (SMA) in Canada Webinar Report
  3. COVID-19 Resources Care Recommendations for Home Based Ventilation Patients
  4. Pulmonary support for people with myotonic dystrophy during COVID-19 pandemic
  5. Letter to provincial governments regarding SMA therapy outcome measures

 

Early Career Holiday Reading

The NMD4C is fortunate to have so many members who are in the early stages of their careers; we believe that providing training and support to these members will impact the knowledge and understanding of NMD for the next generation of clinicians and researchers.

Throughout 2020 we have featured several of our members through our early career blogs; find the full list of blogs here! From finding inspiration to offering new perspectives, the blogs provide insight into the challenges and triumphs of navigating a nascent career in science and medicine.

 

2020 Webinar Wrap Up

With our partner, Muscular Dystrophy Canada, we wrapped our incredible slate of webinars in 2020 with December’s Up and Coming Stars in NMD, where we heard from several young researchers and clinicians who are engaged in exciting projects in NMD.

We are planning to build on these successful webinars in 2021 and will resume January 5th, with All You Need to Know about CMT – Clinical Updates, and NMD Case Rounds and Genetic Neuropathies in the following months!

Check out reports of past webinars in 2020 from NMD4C and our partners:

canada-nmd4c

Read next...

training

Dr. Hanns Lochmüller Presenting at Can-GARD / CCMG The Leading Strand Webinar Series

The Leading Strand webinar series is designed for genetics health professionals, led by the Canadian College of Medical Genetics and co-sponsored by Can-GARD. Speakers will be translation-focused researchers, clinicians and innovators. The series will help attendees anticipate, access, and apply new approaches and technologies for patient care.

Image of publications and text reading "new paper!"

Research Highlight: Study on COVID‑19 in Children With Neuromuscular Disorders

The NMD4C would like to highlight a paper from the Neuromuscular Working Group of the Spanish Pediatric Neurology Society, who have recently published a study which aims to describe the clinical characteristics and outcome of COVID-19 in the pediatric NMD patient population.

BrainRectangularBanner

The BRAIN Conference | Two-day online conference

BRAIN and its Guarantors are excited to announce a new venture: The BRAIN Conference! This two-day conference will feature a selection of fantastic speakers, invited by our conference Chairs from around the globe.

email-3249062_1280

January 2021 newsletter

1) New NMD4C monthly webinar series 2) Update on upcoming conferences 3) Two research participation opportunities 4) New research from NMD4C participants 5) Member spotlight on steering committee member Dr. James Dowling.

mdc-grant-now-open-1200x1200-teal

MDC Annual Neuromuscular ‘Seed Grant’ Competition Launch

MDC is very excited to announce that our Annual Neuromuscular ‘Seed Grant’ Competition has launched and are now accepting applications until Feb 2, 2021 for Translational Science Seed Grants and Clinical Health Management Grants.

bernard_brais_cropped (00000002)

Dr. Bernard Brais Featured in The Economist Report on Navigating Rare Neurological Diseases

NMD4C Investigator Dr. Bernard Brais is featured as a Canadian expert in The Economist Business Intelligence Unit’s recent report Navigating Rare Neurological Diseases: Meeting the Challenge for Policy Makers, Patients and Healthcare Professionals.