2020 NMD4C Year in Review
covidNMD4C 2020 Year in Review
The NMD4C is proud to be where we are today. It is no easy task to unite a diverse community of stakeholders under a clear and united vision; even more difficult is to do so with the unique challenges every single member of our community faced during 2020.
With the sudden onset of obstacles early in the year, we are grateful for the outstanding work and involvement from everyone who was a part of the network in 2020. Thanks to the resilience and drive of our Steering Committee, Investigators, Collaborators, and members, we are in the position to celebrate a year of success and meaningful gains towards our network goals.
We look forwards to growing as a network with all of you in the coming year, and in the meantime invite you to reflect on some of the highlights from the past year.
Wishing everyone a happy holiday, and we will see you in 2021!
Noteworthy News
Revisit the top 5 most-read news stories published by the NMD4C over the past year!
- COVID-19 and Neuromuscular Patients
- Current State of Spinal Muscular Atrophy (SMA) in Canada Webinar Report
- COVID-19 Resources Care Recommendations for Home Based Ventilation Patients
- Pulmonary support for people with myotonic dystrophy during COVID-19 pandemic
- Letter to provincial governments regarding SMA therapy outcome measures
Early Career Holiday Reading
The NMD4C is fortunate to have so many members who are in the early stages of their careers; we believe that providing training and support to these members will impact the knowledge and understanding of NMD for the next generation of clinicians and researchers.
Throughout 2020 we have featured several of our members through our early career blogs; find the full list of blogs here! From finding inspiration to offering new perspectives, the blogs provide insight into the challenges and triumphs of navigating a nascent career in science and medicine.
2020 Webinar Wrap Up
With our partner, Muscular Dystrophy Canada, we wrapped our incredible slate of webinars in 2020 with December’s Up and Coming Stars in NMD, where we heard from several young researchers and clinicians who are engaged in exciting projects in NMD.
We are planning to build on these successful webinars in 2021 and will resume January 5th, with All You Need to Know about CMT – Clinical Updates, and NMD Case Rounds and Genetic Neuropathies in the following months!
Check out reports of past webinars in 2020 from NMD4C and our partners:
Read next...
A Milestone in Neuromuscular Care: AGAMREE® (vamorolone) Approved as the First Treatment for Duchenne Muscular Dystrophy in Canada
Health Canada has approved AGAMREE® (vamorolone), the first-ever treatment for Duchenne Muscular Dystrophy (DMD) in Canada. Patient Support Program opens for enrollment on October 10, 2025.
New Best Practice Recommendations for SBMA Care in Canada
Congratulations to Dr. Kerri Schellenberg, the team of Canadian experts, NMD4C Steering Committee members and Investigators, on publishing the first Canadian SBMA care guidelines!
Advancing Neuromuscular Research and Care: Highlights from the 2025 NMD4C Annual Meeting
On September 11, NMD4C hosted its 2025 Annual Meeting in Ottawa, bringing together clinicians, researchers, trainees, and partners for a full day of collaboration, strategic dialogue, and community-building.
NMD4C Hosts Inaugural Clinical Summer School to Empower Canada’s Future Neuromuscular Leaders
On September 10–11, NMD4C hosted its inaugural Clinical Summer School in Ottawa, bringing together 19 neuromuscular clinical fellows from across Canada for two days of hands-on training, mentorship, and networking. Led by national experts and co-chaired by Drs. Gordon Jewitt and Marianne Nury, the program complemented NMD4C’s accredited lecture series and fostered peer connection through dedicated community-building sessions.
2026 Neuromuscular Postdoctoral Research Fellowships Funding Competition is Now Open!
Apply Or Share this opportunity with the trainees in your network — Deadline: October 14, 2025. Hosted by Neuromuscular Disease Network for Canada (NMD4C) and Muscular Dystrophy Canada (MDC)
Announcing the 2026 Neuromuscular Clinical Fellowship Award Recipients
We are excited to share that the 2026 Neuromuscular Clinical Fellowship Awards have been awarded! These fellowships strengthen clinical training in neuromuscular medicine and help prepare the next generation of specialists who will advance neuromuscular care across Canada.