NMD4C Year in Review

NMD4C 2020 Year in Review

The NMD4C is proud to be where we are today. It is no easy task to unite a diverse community of stakeholders under a clear and united vision; even more difficult is to do so with the unique challenges every single member of our community faced during 2020.

With the sudden onset of obstacles early in the year, we are grateful for the outstanding work and involvement from everyone who was a part of the network in 2020. Thanks to the resilience and drive of our Steering Committee, Investigators, Collaborators, and members, we are in the position to celebrate a year of success and meaningful gains towards our network goals.

We look forwards to growing as a network with all of you in the coming year, and in the meantime invite you to reflect on some of the highlights from the past year.

Wishing everyone a happy holiday, and we will see you in 2021!

 

Noteworthy News

Revisit the top 5 most-read news stories published by the NMD4C over the past year!

  1. COVID-19 and Neuromuscular Patients
  2. Current State of Spinal Muscular Atrophy (SMA) in Canada Webinar Report
  3. COVID-19 Resources Care Recommendations for Home Based Ventilation Patients
  4. Pulmonary support for people with myotonic dystrophy during COVID-19 pandemic
  5. Letter to provincial governments regarding SMA therapy outcome measures

 

Early Career Holiday Reading

The NMD4C is fortunate to have so many members who are in the early stages of their careers; we believe that providing training and support to these members will impact the knowledge and understanding of NMD for the next generation of clinicians and researchers.

Throughout 2020 we have featured several of our members through our early career blogs; find the full list of blogs here! From finding inspiration to offering new perspectives, the blogs provide insight into the challenges and triumphs of navigating a nascent career in science and medicine.

 

2020 Webinar Wrap Up

With our partner, Muscular Dystrophy Canada, we wrapped our incredible slate of webinars in 2020 with December’s Up and Coming Stars in NMD, where we heard from several young researchers and clinicians who are engaged in exciting projects in NMD.

We are planning to build on these successful webinars in 2021 and will resume January 5th, with All You Need to Know about CMT – Clinical Updates, and NMD Case Rounds and Genetic Neuropathies in the following months!

Check out reports of past webinars in 2020 from NMD4C and our partners:

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Text reading NMD4C joins bluesky - We're now active on Bluesky! We invite you to follow us at @nmd4c.ca to stay updated on news from our Canadian neuromuscular network. NMD4C and bluesky logo, with an image of the NMD4C bluesky feed.

You Can Now Find NMD4C on Bluesky

We’re moving to Bluesky! The NMD4C will now share updates on Bluesky instead of X. Please consider following us at @nmd4c.ca to stay connected! 

CIHR Funds Interdisciplinary Project to Study SBMA in Indigenous Peoples of the Prairie Provinces The NMD4C is excited to share that network investigators Drs. Gerald Pfeffer, Alexandra King, Kerri Schellenberg, Toshifumi Yokota and Malcolm King have been awarded funding from the CIHR for an Interdisciplinary Spinal-bulbar muscular atrophy study in Indigenous peoples of the prairie provinces

CIHR Funds Interdisciplinary Project to Study SBMA in Indigenous Peoples of the Prairie Provinces

The NMD4C is excited to share that network investigators have been awarded funding from the CIHR for an Interdisciplinary Spinal-bulbar muscular atrophy study in Indigenous peoples of the prairie provinces, addressing the community needs, and developing clinical knowledge and therapies.

2025 NMD4C early career award winners profile pictures, text reading Congratulations Early Career Award Winners

NMD4C Presents the 2025 Early Career Award Recipients

We are excited to announce the recipients of the 2025 NMD4C Early Career Awards! This is the third year of our annual award program, celebrating excellence and contribution to the neuromuscular field from early career investigators across both clinical and basic science streams.

Muscular Dystrophy Canada is thrilled to launch an innovative initiative designed to tackle the diagnostic hurdles experienced by individuals with myotonic dystrophy.

Muscular Dystrophy Canada Launches Initiative to Improve Genetic Testing Access for Myotonic Dystrophy

Muscular Dystrophy Canada is thrilled to launch an innovative initiative designed to tackle the diagnostic hurdles experienced by individuals with myotonic dystrophy.

LEARNMD content update - February 2025

New Content Available in LEARNMD

LEARNMD is the NMD4C’s online educational platform, offering talks and sessions on a wide range of neuromuscular topics presented by leading clinical and scientific experts worldwide. We’re excited to share what’s new on LEARNMD in February 2025!

RQAS logo

Quebec Network Réseau Québécoise de l’Amyotrophie Spinale Joins NMD4C as Community of Practice Sub-Group

We are thrilled to announce that the RQAS, a network uniting rehabilitation clinicians across Quebec to advance the care of people with Spinal Muscular Atrophy has officially become a sub-group Community of Practice of the NMD4C